@richcolleen I tried the muscle relaxer with out much help so did not continue with use.
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In reply to @richcolleen I’m so sorry you are having the discomfort your having with sore muscles & joints. I too have this however I am on my chemo pills Alectinib. I believe these symptoms are from my medications as I’ve never had them prior to starting my treatment for stage 4 nonsmall cell lung cancer. I never get any response from my oncologist or palliative care. We did lower my dose in Nov which helped a lot! I soak in epsom salts baths which if nothing else feels comforting. If I discover anything that helps I’ll let you know. Take care.
Exercise has been my biggest difficulty while being treated for NSLC with Alectinib. While we are seeing good results on CT & MRI. I am experiencing myalgia, fatigue and shortness of breath. Muscle fatigue as well. Walking is difficult but most enjoyable. I’m having difficulty in the gym finding motivation. The pool is my goal and found I can swim and breath well enough to do a length of the pool. Cycling is doable in short 30 min on my bike on its trainer. Weight gain has been a problem maybe as a side effect of meds but probably mostly due to lack of activity compared to the level of exercise I use to do.
Last week I starting having muscle spasms, the kind that take you to your knees in pain! I have been experiencing muscle weakness and general fatigue but this was way different! After lowering my Alectinib to 450mg twice a day from 600mg twice a day, It took 4 days until I got relief! I was upset thinking I couldn’t take the one main medication that could possibly help reduce my cancer. Dec 9 I will know for sure when I have follow up scans.
Have you heard of others experiencing this? I’m looking at my electrolytes and drinking more water.
Wonderful to hear! Thank you!
Thank you Linda, this does give me hope! I’ll look into the books. I live my life with positivity & gratefulness always look for the silver lining. Learning how to Live with stage 4 lung cancer is a new challenge. My team at Duke Hospital has given me excellent care and we are lucky enough to live 20 mins away. I look forward to hearing how you pace your life.
Peace & light,
I am new to this site and wanted to get feedback from other people work ALK non-small cell lung cancer. In August 2019 I was diagnosed with a brain tumor and stage 4 lung cancer. In 2016 I was diagnosed with stage 1 lung cancer and had a left lower lobe Tony, since then negative chest CTs every 3-6 months until August. Only symptom I had was a slight headache for several weeks which lead us to discover the brain tumor which is a lung cancer met. We were shocked! I had just biked with my husband across Europe.
My doctor started me on Alectinib after the ALK mutation genome returned. I also had 5 days of target radiation to my surgery tumor site after my craniotomy. I am tolerating Alectinib well but experiencing fatigue and shortness of breath. Getting exercise is challenging. I am waiting for my first chest CT since starting Alectinib Dec 9 & Brain MRI Dec 19. I would like to hear from others on Alectinib and their experience.