@johnbishop, Sensory Neuropathy differs from Peripheral Neuropathy in the nerve root innervation and body parts effected. Hope someone can help me with a more specific explanation.
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I see this is an old thread, but the question asked alerted me to two things found on my blood word, Borderline B-12 (for which I am now taking B-12, 3000 mcg, sublingual), and an elevated anti-HDS which is actually associated with atonal sensory neuropathies. The sensory neuropathy has been my operating diagnosis. I could not find any info on-line about possible treatment for the elevated anti-HSD. Is there any information you have on this? Thanks.
I have been a part of this thread of polyneuropathy for several months. Mine is sensory and I do wonder about a connection to my first Shingrix shot. My first concern was to see if anyone has found the symptoms improve over time. But, alas, I am just living with this. I have found Gabapentin has helped with my neuro pain, the creepy/crawly feeling under the skin of my calfs and the overall pain in both legs. All my sleep symptoms disappear as soon as I am on my feet. Disordered sleep was my main problem, though now that I know what to look for I have numbness on the underside of the toes of my left foot. I have kept my Gabapentin at 600 mg. First I was dividing it to 300 mg at bedtime and 300 in the middle of the night. I have now found the 600 mg at bedtime is holding me quite well without leaving me too ‘foggy’. I also take Amitriptyline 25 mg in the evening. I have started taking this in the last afternoon as it has a half life of 20 hrs and holds me better through the night. All this to say, I am 77 yrs and have not taken much or required many meds. This is a new existence for me and I feel it is paramount to get adequate restorative sleep. I know I am on low doses of both Gabapentin and Amitriptyline and it takes a while to get adjusted. It is so difficult to be patient with these changes.
My legs and feet ache and are painful at night. As soon as I am on my feet all that resolves. I had the first shingles shot in ‘09 then has a mild case of shingles in 2011. Now I have had one of the Shingrix and will stop here. I know how terrible a case of shingles can be both painful and debilitating.
The Neurologist has been very helpful. I have been on the Gabapentin since 6/18, 5 months and the Amitriptyline since 8/8, 3 months. I have been patient with following my regime and try not to knee jerk my changes. I take 300 mg of Gaba at bedtime and repeat x1 at about 2-3 a.m. I take the Amitriptyline 25 mg at about 6 p.m. as it has a longer half life. My sleep is going well now. Will I always have to take these meds? Gabapentin 600 mg slow release is very expensive, $450/mon, so I will stick with the 300 mg x 2. So, back to my original thought, could this be self resolving? I know many friends who have had no side effects from the Shingrix shots, but I also know several others who have had different and milder symptoms.