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Mon, May 4 10:25am · Neuropathy: Anyone have any experience with gabapentin? in Neuropathy

I have sensory neuropathy in my feet and lower legs. I started Gabapentin 11 months ago and have had an abundance of relief from it. I take 600 mg at bedtime and am able to get a good night’s sleep. The symptoms I feel it relieves includes the achy/pain in my legs at night as well as the creepy/crawly feeling under the skin of my calfs at night. Once I am up in the morning, any/all symptoms go away. I have good balance and gait, and get good relief from yoga that stretches.

Wed, Mar 11 8:51pm · Shingrix and peripheral neuropathy in Neuropathy

Just had a friend tell me yesterday that one month after the first Shingrix shot, she developed shingles, It has been a mild case and a pharmacist/family member, recommended she be sure to get the 2nd shot but at 6 months to a year later…not too close to the first one. So many varying pieces of info out there.

Tue, Feb 25 11:38am · Shingrix and peripheral neuropathy in Neuropathy

Is any healthcare system gathering data re the Shingrix vaccine and side effects?

Sat, Feb 22 12:00pm · Shingrix and peripheral neuropathy in Neuropathy

I have been surfing this site for info re ShingRix. Immediately after my first ShingRix, on March 12, 2019, I had what I thought were to be symptoms or Restless Leg. It was five months, a sleep study, and a myriad of blood tests before a neurologist did an EMG and said I have Idiopathic sensory neuropathy of unknown etiology. I don’t feel it has progressed beyond my toes and lower legs. I am taking Gabapentin, 600 mg at bedtime and Amitriptyline 25mg at 6 p.m. I have never increased this. I sleep well 95% for the time, do have a hard time getting up early in the morning, but do not feel the need for a nap during the day. One of my immune test results is a bit off but no treatment for this located. Based on my history, I am unwilling to have the 2nd ShingRix. Yoga helps a lot. My balance is good as is my gait. Any thoughts? Thanks from this 77.5 yr old female.

Thu, Jan 16 10:45am · Anyone here dealing with peripheral neuropathy? in Neuropathy

@johnbishop, Sensory Neuropathy differs from Peripheral Neuropathy in the nerve root innervation and body parts effected. Hope someone can help me with a more specific explanation.

Tue, Jan 14 11:43am · Shingrix and peripheral neuropathy in Neuropathy

Immediately after my first Shingrix shot I developed sensory neuropathy, not peripheral neuropathy. I am reluctant to get the 2nd Shingrix.

Sat, Jan 11 8:50am · FGFR3 ANTIBODY in Neuropathy

I see this is an old thread, but the question asked alerted me to two things found on my blood word, Borderline B-12 (for which I am now taking B-12, 3000 mcg, sublingual), and an elevated anti-HDS which is actually associated with atonal sensory neuropathies. The sensory neuropathy has been my operating diagnosis. I could not find any info on-line about possible treatment for the elevated anti-HSD. Is there any information you have on this? Thanks.

Sat, Jan 4 2:39pm · Neuropathy & Exercise in Neuropathy

I have been a part of this thread of polyneuropathy for several months. Mine is sensory and I do wonder about a connection to my first Shingrix shot. My first concern was to see if anyone has found the symptoms improve over time. But, alas, I am just living with this. I have found Gabapentin has helped with my neuro pain, the creepy/crawly feeling under the skin of my calfs and the overall pain in both legs. All my sleep symptoms disappear as soon as I am on my feet. Disordered sleep was my main problem, though now that I know what to look for I have numbness on the underside of the toes of my left foot. I have kept my Gabapentin at 600 mg. First I was dividing it to 300 mg at bedtime and 300 in the middle of the night. I have now found the 600 mg at bedtime is holding me quite well without leaving me too ‘foggy’. I also take Amitriptyline 25 mg in the evening. I have started taking this in the last afternoon as it has a half life of 20 hrs and holds me better through the night. All this to say, I am 77 yrs and have not taken much or required many meds. This is a new existence for me and I feel it is paramount to get adequate restorative sleep. I know I am on low doses of both Gabapentin and Amitriptyline and it takes a while to get adjusted. It is so difficult to be patient with these changes.