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Nov 13, 2019 · Daughter not on medication for seizure no diagnosis in Epilepsy & Seizures

I do that. I didn’t know it had a name. Thanks

Nov 13, 2019 · Any experience w/ med: Oxcarbazepine (Oxtellar XR, Trileptal)? in Epilepsy & Seizures

I am not sure how to edit my original post. I am currently on 150mg x 2.

Nov 12, 2019 · Any experience w/ med: Oxcarbazepine (Oxtellar XR, Trileptal)? in Epilepsy & Seizures

I saw my doctor today. After continued seizures my doctor want to change my medicine from Vimpat 10mg x2 to Oxcarbazepine 600mg x2. Does anyone have experience with Oxcarbazepine? What are your pros and cons. Any side effects?

Nov 3, 2019 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Hi Jake,
I don’t remember the terminology my doctor used (I have a hard time remembering anything anymore) but he did say the activity starts on the left side of my brain and then moves around. All of this is new to me. That’s why I’m here. I’m hoping to educate myself and possibly have some control of the seizures.
I have had two clonic tonic seizures. Both played out exactly the same. I was wine tasting both times. (I am not a “drinker” per say but I love the wine tasting experience). The first time I was in Paso Robles. We tasted on Friday. Saturday morning I got up, had a cup of coffee and suited up to go on a bike ride with a group of friends. Half way through the ride my aura started. I didn’t know what the feeling was. It lasted about an hour before the seizure. During the time i was coherent but not able to articulate. I couldn’t speak but I could hear. I couldn’t make sense out what was being said to me. After about an hour I had a clonic tonic. The second time I was wine tasting in Napa valley. Minus the bike ride, it was pretty much the same scenario. Both times I was not drunk, and woke up fine. I thought the trigger may be the sugar in the wine, dehydration, or the coffee. Although I love wine tasting I am willing to forgo it to eliminate seizures.

Nov 3, 2019 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

For many years I was experiencing vertigo. As I got older it got more frequent and for longer durations. About three years I went through all sorts of testing to see what is causing it. The final test was an EEG. I was diagnosed with partial complex seizure disorder presenting as Vertiginous Epilepsy. Since then I have been being treated with 150m x2 of Vimpat. I have had two Clonic Tonic seizures that I went to the hospital for. Each EEG I have still presents seizure activity. I have an appointment to see my doctor in two weeks. I’m wondering if I should talk to him about other treatment options? Is this a controllable disorder by diet and other natural methods, such as sleep, etc.? Any experience/ advice?