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Wed, Nov 13 6:58am · CRPS - anyone suffering with complex regional pain syndrome in Chronic Pain

Thank you. I'm very sorry for your pain.

Scrambler Therapy (ST) is one of the treatments I am looking at for our daughter with Chronic Regiona Pain Syndrome (CRPS) It was formerly (RSD) .

There is a physician in Bonita Springs, FL – Dr. D'Amato who does Scrambler Therapy (ST) He is well respected in the field and I believe he has actually trained some physicians at Mayo. I think Mayo is starting to offer ST but I'm 100% sure. You are right, I'm finding treatment outcomes can vary widely with patients. There is not a one size fits all with neurological issues and many times a combination of therapies.

Tue, Nov 12 9:19am · CRPS - anyone suffering with complex regional pain syndrome in Chronic Pain

Yes, I should have clarified. Thank you. Chronic Regional Pain Syndrome (CRPS) formally Reflex Sympathetic Dystrophy (RSD)

Mon, Nov 11 7:36pm · CRPS - anyone suffering with complex regional pain syndrome in Chronic Pain

Look up Spero Clinic in Fayetteville Arkansas. Dr. Katinka is doing some interesting things. Also, Scrambler therapy. Watch Dr. Chopra's lecture on CRPS via YouTube. There is a link between gut health and CRPS and possible link of MTHFR and CRPS. There is hope.

Mon, Nov 11 7:34pm · CRPS - anyone suffering with complex regional pain syndrome in Chronic Pain

Don't amputate. Surprised how many do not know how to treat this Chronic Pain Disease. Look up Spero Clinic in Fayetteville, Arkansas. Also Scrambler Therapy – Mayo Rochester and Dr. D'Amato in Bonita Springs, FL. Go on YouTube and watch lecture by
Dr. Chopra. Informative. Also articles on links with gut health & MTHFR with CRPS. Sounds like he has been treated mainly for symptoms and whole body, reason behind the CRPS. There's hope.

Mon, Nov 11 7:25pm · CRPS - anyone suffering with complex regional pain syndrome in Chronic Pain

I heard Mayo Jacksonville may start Scrambler Therapy also. Dr. D'Amato is in Bonita Springs, FL and he is well known for his knowledge with ST.

Mon, Nov 11 7:21pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Thank you. CRPS is diagnosed with severe burning pain (normally to any limb) after any injury (but not always). The pain worsens and pain does not fit the initial injury; pain scale above child birth. Brain pathways cross and send signals there is still pain, overcompensating. She is under care of pediatrician, physical therapist and psychologist as it is also labeled "suicide disease"; depression can set in quickly. Have spent several weeks, researching, education, vetting therapies/clinics all over the US for children. There are several 9-5 programs: focus on desensitation, intense rigorous physical therapy 5x/week for up to 12 weeks. etc. One therapy I'm exploring right now, that can also help relieve peripheral neuropathy is Calmar Scramble Therapy, have you heard of it?

Sat, Nov 2 6:50am · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hello, my daughter (10) is newly diagnosed CRPS (chronic regional pain syndrome) right ankle and has not walked since Juky 2019. Trying to find her pain relief & treatment options.