@paiva, Yes! Your emotions and questions were the same as mine initially upon hearing the neph's first words: "You have stage 3 ckd", with only the briefest of instruction other than stop NSAIDS and reduce Vit C. Also, with no family history of CKD, I'd never given kidneys a thought and had been basically priding myself for following a mediterranean diet and for taking such good nutritional care of my aging self. vbg
I, too, began researching Mayo online as well as other sites,including the two reliable sources you mentioned. Discovering the Devita and kidney school sites offered a wealth of information before finding the Mayo Connect kidney forum.
In a city of over 200,000 and three large hospitals, I also searched for local kidney support groups because I knew no one with kidney disease to talk with in person about this scary diagnosis. It took a long while to eventually learn that we have one kidney support grp that meets qtrly at our teaching hospital. It took a call to a private dialysis center to learn of it. I attended one session before Covid struck and was so happy to actually meet and talk with others. Some were years! recovered kidney transplant patients and one was just starting in home dialysis. The grp leader was very knowledgeable and that meeting of 11 attendees was so informative and supportive. I was amazed that one attendee was not a kidney patient but a heart transplant patient. In this city, there is not a single heart support group and this was the closest thing she could find for in person support and sharing. Imagine!
I'll be closely tracking the increasing spread of the virus in my community before deciding on whether or not to have much needed labs done in August at the Quest Diagnostic Lab my neph. uses exclusively. I worry about the lab because of crowding and walk-ins. However, I've already postponed an earlier visit and really need to have labs done to see where I am.
In times of new serious health diagnoses or while waiting for other test/lab reports to reveal more, I think the "waiting and not knowing what may lie ahead" is one of the hardest things to endure. Like you, I am so grateful that we can participate in a trusted forum in which patients can share and learn. Knowing that we are not alone and that many are contending successfully with more advanced stages and procedures is worth its weight in a ton of plutonium or platinum or maybe even fudge for those of us chocolate lovers???
If you are able to schedule a phone visit with a dietitian, you may want to have your lab values available to share so that the pro can help you devise a suitable meal plan. I kept asking for a doc referral so that ins. would help defray charges but I have to tell you, that I would have gladly spent the $330 fee out-of-pocket if I'd known what dietitian to call for an appointment.
Hope you'll be able to talk with a renal dietitian who can help guide you. Mine was a new college graduate and not with a renal specialty but his time and input for a combined diabetes/kidney diet made a huge difference in my meal planning and peace of mind.
Let us know how you are doing, ok?