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Posts (917)

10 hours ago · Colon cancer metastasized to lungs: Husband severely depressed in Colorectal Cancer

@colleenyoung, What a touching and meaningful response to @lah you shared with her and all of us. How good, although regrettably personally hurtful, it was to hear from his perspective what he wanted, didn't want, and needed as he confronted the continual changes in his illness. You've provided insights we can all benefit from. Thank you.

10 hours ago · Mom has stomach cancer in Cameroon: Young caregiver in Cancer

@arreyprotus, Good to hear your update and imagine you all must be so happy to be home once again. Will be thinking of you as the chemo starts. Hope you will stay in touch and let us know how you are doing.

10 hours ago · Visual Escapes and Daily Inspirations: Share Yours in COVID-19

@zeiracorp , What a stunning photo, Z! Thank you for sharing it.

10 hours ago · Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD) in Kidney & Bladder

@kamama94, As shocking as hearing "stage 3", was, I can't even imagine what hearing stage 4 on the way to stage 5 must have been for you! Oh my goodness! And am I remembering correctly that you are also a nurse? If so, as a nurse, you knew so much more to be alarmed about than one not medically trained and also showing no symptoms.

Like you, by the time I first saw a neph., I'd already started researching ckd because of a written report sent from a scan stating "renal disease" and was printing out lists of "ok and "to avoid" foods.

Still hard to accept that my pcp had also seen that scan report, had been sending me regular lab reports for years but only referred me to a nephrologist when I insisted on seeing one.

Neither pcp nor kidney doc mentioned diet; I was the one who made 4 requests before being referred to a dietitian. How fortunate you found a pcp who readily answered your questions and made your referral to the specialist.

Until the pre-diabetes diagnosis, the word "diet" had never had a place in my vocabulary. Smiles While I did make a sea change by revamping my diet, I am not strictly vegetarian and do very occasionally have a small bit of meat and dairy.

Really like your closing statement and certainly agree that: "There is hope." And hope visits this group often.

How long did it take for you to finally resolve the months long shingles ordeal? Good to hear from you and that more products are now available for kidney patients. How is your revised cookbook coming along? Are you taking special health precautions along with the virus specialists' published guidelines?

15 hours ago · Let’s Go Walking! Join me for a virtual walking support group in Cancer: Managing Symptoms

Thank you, @jude07. I think the anxiety of what I might experience was what truly exhausted me. And I appreciate your reminders of taking small steps especially because being an avid goal setter and list maker, I knew if not careful, the list would grow beyond manageable this first time out. When daughter asked what I bought, she actually complimented for not over-extending my list…this gal knows me far too well, right? Smiles

15 hours ago · Let’s Go Walking! Join me for a virtual walking support group in Cancer: Managing Symptoms

@mayofeb, How did you guess? My first name is "Alice" and our Jr. English teacher required us to write an autobiography. I used "wonderland" quotations to preface each of my chapters and still have that gingham bound album with a cover photo dressed also in gingham among my keepsakes.

Loved your description of clutching that shopping list like your mother's precious pearls…I can sooo relate! lol

Yes, Sprouts is a favorite mkt for fresh veggies, fruits, meats, fish, seafood and nuts. They did start a delivery service after I'd started using another regionally owned local supermarket which offered more of my favorite brands of other foodstuffs so I've continued with that one. We don't have a Ralph's but understand that WalMart, Sams and Costco here also offer curbside service.

Since I'm in the absolute minority by still using a primitive "flip phone", my ordering choices are more limited. Nope, still limp as a soggy stick of celery but thanks for asking! Think I'm up for making a smoothie and then looking for another easy dinner tonight. Take care and thanks for responding.

15 hours ago · Let’s Go Walking! Join me for a virtual walking support group in Cancer: Managing Symptoms

@colleenyoung, I am so jealous! Forget the shade your lovely oversized apricot tree provides and is appreciated and tell us about any apricot harvests? I think apricots are truly God's best nectar and while my tree was lost several years ago due to borers which I didn't know to watch for, my neighbor's bumper harvest last spring had us gathering them early and late. They are our first early spring local fruit to bear and usually due to weather only make every year or two. When they do, it is a bonanza but a lot of work in the kitchen making preserves, fried pies and cobblers. Ahh, next spring cannot come too soon. Smiles

20 hours ago · Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD) in Kidney & Bladder

@paiva, Yes! Your emotions and questions were the same as mine initially upon hearing the neph's first words: "You have stage 3 ckd", with only the briefest of instruction other than stop NSAIDS and reduce Vit C. Also, with no family history of CKD, I'd never given kidneys a thought and had been basically priding myself for following a mediterranean diet and for taking such good nutritional care of my aging self. vbg

I, too, began researching Mayo online as well as other sites,including the two reliable sources you mentioned. Discovering the Devita and kidney school sites offered a wealth of information before finding the Mayo Connect kidney forum.

In a city of over 200,000 and three large hospitals, I also searched for local kidney support groups because I knew no one with kidney disease to talk with in person about this scary diagnosis. It took a long while to eventually learn that we have one kidney support grp that meets qtrly at our teaching hospital. It took a call to a private dialysis center to learn of it. I attended one session before Covid struck and was so happy to actually meet and talk with others. Some were years! recovered kidney transplant patients and one was just starting in home dialysis. The grp leader was very knowledgeable and that meeting of 11 attendees was so informative and supportive. I was amazed that one attendee was not a kidney patient but a heart transplant patient. In this city, there is not a single heart support group and this was the closest thing she could find for in person support and sharing. Imagine!

I'll be closely tracking the increasing spread of the virus in my community before deciding on whether or not to have much needed labs done in August at the Quest Diagnostic Lab my neph. uses exclusively. I worry about the lab because of crowding and walk-ins. However, I've already postponed an earlier visit and really need to have labs done to see where I am.

In times of new serious health diagnoses or while waiting for other test/lab reports to reveal more, I think the "waiting and not knowing what may lie ahead" is one of the hardest things to endure. Like you, I am so grateful that we can participate in a trusted forum in which patients can share and learn. Knowing that we are not alone and that many are contending successfully with more advanced stages and procedures is worth its weight in a ton of plutonium or platinum or maybe even fudge for those of us chocolate lovers???

If you are able to schedule a phone visit with a dietitian, you may want to have your lab values available to share so that the pro can help you devise a suitable meal plan. I kept asking for a doc referral so that ins. would help defray charges but I have to tell you, that I would have gladly spent the $330 fee out-of-pocket if I'd known what dietitian to call for an appointment.

Hope you'll be able to talk with a renal dietitian who can help guide you. Mine was a new college graduate and not with a renal specialty but his time and input for a combined diabetes/kidney diet made a huge difference in my meal planning and peace of mind.

Let us know how you are doing, ok?