I am sorry that you got denied an appointment. This past Friday, I too was denied an appointment because my case was too complex and they didn't have the appropriate specialist's on staff. I do not have an official diagnosis,. I was just asking for an appointment to get a diagnosis, so how they knew they didn't have the appropriate doctor is beyond me. Plus, I too thought we were supposed to go to Mayo when our doctors didn't know what else to do. It looks like we need to find a new miracle hospital to help us. You will be in my prayers! Hopefully there is some measure of comfort knowing that you are not alone.