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Posts (8)

Dec 5, 2019 · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

There are other doctors who will work with you to make your life the best it can be.

Dec 4, 2019 · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

I think the third one is tramadol. I think these drugs are effecting my memory. I only wanted to say what works for me in the hope your docs will continue to look for solutions for all who are suffering.

Dec 4, 2019 · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

I wasn't able to tolerate either Cymbalta or Lyrica which were prescribed by the pain management doctors at a huge medical center. I told my internist and she suggested a protocol that has been used for many years for chronic pain. It is a combination of Norco, gabapentin and Neurontin. I think that's right but truthfully I am visiting family and didn't bring the bottles with me. This has worked well for me for 14 years.

Dec 4, 2019 · "Electric Shock" type pain in my scalp! in Chronic Pain

Egads!so sorry for your pain. Are you on any pain meds to help you deal with this?

Dec 2, 2019 · Left hand amputated more than 40 years ago in Chronic Pain

Hi, I suffer from phantom pain also. I have been taking quite a lot of pain meds for 14 years after a bout of negotiating fasciitis.. I couldn't live without them so take them even tho I think they make me tired and stupid. I feel for my fellow travelers. It seems I am getting better help from my pain specialust. Mine is very caring and supportive. That really helps. My pain , when controlled by the pain meds is dull and achy. If it gets out of control it is Sharp e!ectric like bolts shooting through my arm. The kind you have to jump up and down or pound on something, or do as jig til it quiets down. Not fun. I would really like to get off the pain meds but I don't want to implant a foreign thing into my body especially when there's no guarantee it will be helpful. I feel so badly for the young soldiers coming home wounded and crippled. At least I was older when this happened to me.

I use to think about going to Brazil to see John of God and pray for a miracle but I guess he's been found to be a quack.

Dec 1, 2019 · Has anyone one tried the HF10 Spinal Cord Stimulation Device? in Chronic Pain

Thanks for asking about this When I had knee replacement surgery I was required to see the pain specialists at that hospital because I survive on pain meds and couldn't go off them prior to surgery which was one of their requirements. They recommend something like you asked about. I don't remember the name. I felt like I was dealing with aggressive car dealers and didn't probably give them a fair opportunity.

I asked a pain doctor about a Medtronic pain device I read about for my phantom pain some years back but he said as long as I can manage with the pain meds I wouldn't want to put a foreign device into my body.

I do ok on the meds but I am always tired and I think they effect my brain/memory. But that might be Aging or something else.

I am sorry I don't have an answer. I am hoping others will contribute to the conversation.

Nov 9, 2019 · Phantom Pain in Chronic Pain

Thank you for responding. Every day I think of the young soldiers who have lost limbs and will suffer the rest os their lives. I wss 62 when I had nf. I see a pain specialist regularly and am able to get drugs that certainly help. I wish I didn't them. I know they make me tired and dumb. I thought vets had access to good health care so I don't understand why you can't get meds to help you.

Oct 28, 2019 · Phantom Pain in Chronic Pain

Hi fellow pain sufferers, fourteen years ago when I was 62 I "caught" necrotizing fasciitis" better known as the 'flesh eating disease'. I am happy to be alive but I lost an arm and have had pain in that missing arm all these years. It is controlled by opioids. I sure wish I didn't have to take them but have tried other pain techniques but so far haven't found any relief. I don't feel like an abuser because my pain meds are prescribed but I am addicted in the sense that I wouldn't be able to live without them. On a couple of occasions my pain has gotten out of control and then I have shooting pains like electricity running through my arm at a high voltage. It sometimes has taken 2 days to get it back under control so I try very hard not to have that happen. I would like to hear what other phantom pain sufferers have experienced. I know every amputee doesn't have this happen to them. I asked my pain doctor and he said no one knows why that is.