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Posts (8)

Sun, Nov 3 12:22pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thank you John for all your info about The Protocol. I placed my order today and I'm all excited to begin a new transition into a happier and healthier lifestyle. I'm looking forward to 525 with less pills to take but I need to start now. 🙂

Fri, Nov 1 8:05am · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi John,
I read your message and I really want to believe. I've wasted so much time and energy trying all the different programs. The latest is with my doctor for daily vitamin packets which turned out to be something I can't use because of the high amount of B6 in the multi. All together that farce cost me a total of $600, $400 for the office visit and $200 for the vitamins that I can't use. I just get so that I find it hard to trust people anymore. I have idiopathic PIN for 20 years and have not been on any prescription meds for the past 10 years. I'm trying to research a way to help with healthier nutrition and vitamins because I really believe it starts in the gut. I plan to use the vitamin packets I have left sans the B6. I will order the Protocol once I do that. Thank you for your message and I hope you have a happy weekend. 🙂

Thu, Oct 31 9:30pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

I joined the facebook solutions group but something didn't sit right with me. I found a link which states that it is a total scam. Because I'm new here I'm not allowed to post the link. I think you might be interested in reading it, ripoffreportdotcom. I am so sick and tired of all the scammers out there who really don't care about our suffering, it's only how they can profit from our misery!

Mon, Oct 28 2:29pm · Living with Neuropathy - Welcome to the group in Neuropathy

I had to create a new account on FB. I deleted my original one because there was too much drama. I hope they will accept my new name. Thank you for the link. I am obsessed with the belief that vitamins and clean eating will help to relieve some of the misery we all share. I know we can all learn from each other because other people have no idea what we are going through.

Mon, Oct 28 1:03pm · Living with Neuropathy - Welcome to the group in Neuropathy

I believe it is more about B6 rather than B12 which can exacerbate neuropathy if you have too much of it. My blood levels on B6 are normal so I decided to take a multi with 12.5 of B6 in it. After a week my feet and legs are bright red and hot to the touch. I developed a red rash around my right ankle and I have pain all day. I usually have most of the burning pain at night and am able to function during the day, but not since I've been on the B6. I stopped taking it today so I will post here in about a week to see if it helps. The doctors tell you that the B vitamins in combination will work, but I wonder how many of them take the time to research the adverse reactions of B6 and neuropathy.

Mon, Oct 28 6:37am · Insomnia. Nothing seems to help. in Sleep Health

I have no problem falling right to sleep but then wake up within the hour and if I can get back to sleep I'm waking up every couple of hours. If I'm lucky I can get about 4 hours sleep in all. I have tried prescriptions, melatonin, herbal teas, meditation, pm's, etc. The only thing that gets me at least 4 hrs. of sleep without waking up is the ingredients in Benadryl. Taking that every night causes dry mouth, urine retention, and worst of all "Dementia" which is something I don't need at my age because it just comes naturally now! The thing that helps the most is Yogi Bedtime herbal tea and an occasional afternoon cat nap! 😴

Mon, Oct 28 6:14am · Living with Neuropathy - Welcome to the group in Neuropathy

Good Morning @ew100, The letters PIN are short for Peripheral Idiopathic Neuropathy, something I learned on another support site (NeuroTalk.com). I believe depletion of the B vitamins, mainly B1,12 and 6 have a definite effect on neuropathy. My urologist has taken a course in health and wellness and is helping me with vitamins and supplements. I just joined her group this week and started taking a special packet of daily vitamins. I will meet with her 5 weeks from now to see if it makes a difference in the symptoms of my PIN. I decided to do this because I believe nutrition and vitamins are essential to our health, especially at our age. There are so many different brands and kinds of vitamins that can be very confusing. My daughter is a certified health and wellness coach, and has finally convinced me that "We are what we eat". I have given up sugar and drinking smoothies and herbal teas which have helped me to lose 30 pounds over a period of 2 years (mostly belly fat). My daughter can't prescribe any tests so that's where my urologist comes in. Every other doctor I have ever talked to about vitamins, nutrition or neuropathy doesn't know anything about any part of it, even the so-called Neurologists. I asked my PC why my ankle turns white when I flex it and why it's red and hot, her answer was, "I don't know". We can learn more here in these groups with others that are in the same predicament as we are. I am into the nutrition side of therapy rather than meds. I am trying to stay away from any prescriptions for as long as I can. I am more than willing to help if I can…..😍

Sun, Oct 27 8:24pm · Living with Neuropathy - Welcome to the group in Neuropathy

I would like to introduce myself as someone who has been living with Idiopathic Neuropathy for about 20 years. I have run the gamut with testing and several different neurologists. I've had EMG testing 2 different times with 2 different results, first no neuropathy or maybe small fiber, and just recently polyneuropathy. I really believe that vitamins, supplementation and nutrition would help. I've tried different meds but so far I'm dealing with the pain because I can't tolerate the side effects. I'll be 81 in January, and other than PIN, I'm in pretty good health. I'm wondering if anyone has had any experience as far as seeking out a professional who can help with nutritional and supplement guidance when it comes to neuropathy. The many different doctors I have seen over the years know absolutely nothing about neuropathy, that includes my Primary Care doctor, 2 podiatrists, 3 different Neurologists, and even physical therapy. One doctor told me it was called Idiopathic because the idiot doctors don't know anything about it, that made me smile. Thank you for listening. 🙂