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Mon, Oct 28 9:55am · Chronic Sinusitis in Ear, Nose & Throat (ENT)

My infections started a few months after moving in Dec 13 and got much worse after the fires from Indonesia in 2015 which blew our way for 2 months. I have had multiple hospital admissions and finally surgery in late 2014. I was hospitalised in 2016 with another bad sinus infection which led to endocarditis, pericarditis and septics arthritis. ENT thought when I moved back home with clean air I would get better but sadly I have had to have 3 more surgeries. I also have a sun allergy and Raynauds along with it. My immune system seems to have gone haywire. As mentioned I did see an immunologist and tests were inconclusive. Re the staph they cultured it after surgery and it is not MRSA.
I am vegan and have been going to a naturopath for many years. She has now said there’s not much else she can do.
I am currently on another course of antibiotics as I presently have another infection.
The worse part was in late 2018 I was complaining about headaches and ENT said all was clear when he did the scope and thought it may be GERD. Put on meds for that but headaches and post nasal drip continued for 6 months. It was only when I had a severe infection he did another CT an it showed severe disease and did another surgery where they also found I had polyps. I asked why didn’t he see the infection under scope and said the infection had walled off so it looked clear.
Even the CT did not show the polyps.
I do not know what else to do and my body is full of antibiotics. I probably have had 40 courses in last 5 years.

Sun, Oct 13 2:12pm · Chronic Sinusitis in Ear, Nose & Throat (ENT)

Many thanks for your reply.I moved to Asia and within weeks I began to have URI symptoms. First hospitalised six months later for sinus infection and IV therapy and then my first ENT surgery. In 2015 the fires in Asia which lasted 2 months did not help and I was hospitalised numerous times for IV therapy. I returned home in 2017 and since then I have had 3 additional sinus operations including turbinate and the last one a modified Lothrop. My ENT does not like to do surgery as each time I lose some structure and integrity however the level of infection is severe and the last CT showed the sphenoid completely blocked. I flush twice a day and usually nothing comes out. Since this has all started I have also developed a skin rash requiring a regime of 3 months of histamine blockers, severe rash when I go on a beach vacation, skin abscesses requiring drainage and raynauds. I have seen a rheumatologist, infectious disease specialist, gastroenterologist (to rule out GERD) and an immunologist. Some of my lab tests were abnormal but nothing drastic. I also follow a vegan diet and take probiotics. I was contemplating asking for second ENT opinion but as mentioned my doctor is the one that other ENT refers the severe cases to but perhaps it’s time. It’s a horrible way to live and I try to remain positive buts it’s not easy.

Thu, Oct 10 11:22pm · Chronic Sinusitis in Ear, Nose & Throat (ENT)

Many thanks for your reply. No I have not got a second opinion as my ENT is considered one of the best in the county and he deals with the most difficult cases. The problem is I have been so I’ll-tired with severe headaches that I haven’t been at my best but just this month I have been considering getting one.

Wed, Oct 9 6:43pm · Chronic Sinusitis in Ear, Nose & Throat (ENT)

Hoping to get some help. I was in excellent health and never had any sinus issues but in 2013 while living in Asia I developed almost monthly sinus infections requiring 3 hospital admissions in 2 years and finally extensive ENT surgery. One year after surgery I became extremely ill and was admitted yet again with sinus infection, endocarditis, pericarditis and septic arthritis. It finally abated and I moved back home and away from the poor air quality hoping things will improve. Since then I have had numerous sinus infections requiring 3 more surgeries and frequent visits to ENT for endoscope and cleaning. I have been saline rinsing the whole time sometimes with a steroid spray or antibiotic ointment in the saline bottle. I have been on so many antibiotics and steroids my doctor is reluctant to put me on anything else unless it’s severe. My symptoms are getting worse with constant post nasal drip, terrible headaches and green hard debris dropping from my sinus to mouth and and it seems like this will never end. The infection is staphylococcus and was originally in the sphenoid sinus but the others have been affected as well. All allergies test have been negative. Any help appreciated.