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Mon, Mar 23 11:42am · Myasthenia Gravis in Autoimmune Diseases

I appreciate your info. I wish you well. My Neurologist did tell me the first two years after diagnosis are usually hardest. I paraphrase 😏
I pray your aggressive treatment will soon make a big difference in your symptoms.
I am beginning to notice big improvement a few days after my IVIG that last about 10 days.

Sat, Mar 14 10:54am · Myasthenia Gravis in Autoimmune Diseases

In my earlier post, I described my getting a diagnosis of MG last year. I was hospitalized three times last year. Each time, I received several IVIG. In early February this year, I was very sick with a UTI and upper respiratory problem but not hospitalized.
My meds for MG are IVIG every 4 weeks (just changed to every 3), Mycophenolate 500MG 2 in morning 2 in evening and Prednisone 10MG daily.
I am 81 years old with Type 1 Diabetes, and don’t expect to ever be “perky” ha!
But this past month has been ok. I had 3 weeks with pretty good vision. So, hope springs eternal😊.
I wish you well.

Sat, Jan 11 9:26am · Weak, Sick, & Scared in Autoimmune Diseases

Your symptoms are very similar to what mine have been for about 3 years. This all started from being diagnosed with Bell’s palsy in April 2017. I was left with a droopy eye and mouth. My double vision began about 5 months later. That lasted 9 months then seemed to go away. It returned 6 months later. I spent many months with ophthalmologists. Many tests and no diagnosis. Myasthenia Gravis was suspected but blood tests negative. A new Ophthalmologist diagnosed optical M G in th spring of 2019. When I became ill with bronchitis last summer, I was admitted to hospital and was told that 15% of people with normal blood tests for M G have this autoimmune disease. Flares are triggered by illness and your flu could be doing this.
See a neurologist and be checked. I am being treated and am having some relief.
Don’t give up. I pray that you and your husband have big improvements soon.

Nov 13, 2019 · Autoimmune mystery in Autoimmune Diseases

Many of these symptoms sound very familiar to me. I have had double vision for two years. Blood tests have been negative for myasthenia Gravis but when I became ill with similar problems this summer I have been diagnosed with mg. I have a new neurologist and am under treatment. I am 81 years old and seldom feel well but I am encouraged.
Please get the doctors to consider treating her for ms! I get IVIG every 4 weeks. I take Celcept and steroids (slowly reducing these).

Oct 3, 2019 · Myasthenia Gravis in Autoimmune Diseases

In April of 2017, I had symptoms of stroke but eventually was diagnosed with Bell’s palsy. Six months later, after seeing Opthalmologists for dropping eyelid, I began seeing double. After much testing including blood tests for MG (negative) it seemed there was no answers. I went to another Opthalmologist who did something with ice on my eyes and he was sure that I had MG. In April of 2019, new Neuro diagnosis of Ocular MG.
This summer I became pretty sick with cough and shortness of breath. Bronchitis and the pulmonary dr arranged for me to see Neurologist who is now treating me for generized MG.
I have had 6 IVIG infusions. I am hopeful.
I am also on steroids and have begun Mycophenolate.
Long story and to answer your question, yes I have had IVIG but time will tell if It will help.