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Sat, Jan 18 4:48pm · Testing for Neuropathy in Neuropathy


No, I don’t. I was just told that I have nerve damage in my left leg based on a NCS. However, I want to be tested for neuropathy. It’s frustrating to be tested for MS without giving an explanation as to why that’s a concern and even more frustrating to be told that he won’t test for neuropathy because I don’t have symptoms in my feet. Thanks for inquiring.


Sat, Jan 18 4:44pm · Testing for Neuropathy in Neuropathy


I am so glad you asked that question. And the answer is a resounding no. I was told it’s “medically necessary” to rule out MS first. 🤷🏾‍♀️ All of the answers to my questions were either extremely vague or over generalizations. Thanks again for asking.


Sat, Jan 18 4:28pm · Testing for Neuropathy in Neuropathy


Thank you for sharing your experience. So far, I’ve only had EMG and NCS. The NCS showed damage in my left leg. I haven’t gotten past this point yet. I’m not in pain, so I don’t think the PA took me very seriously. In fact, she said, “You definitely don’t have neuropathy because your symptoms aren’t in your feet and you’re not burning.” I know from my own research and speaking with all of you that neuropathy doesn’t follow any rule book. What type of MRI did your doctor order, Chris?


Sat, Jan 18 4:22pm · Testing for Neuropathy in Neuropathy

Brain, spinal and one more that I can’t remember right now.

Sat, Jan 18 2:05pm · Testing for Neuropathy in Neuropathy


Thank you for sharing your experience. I really appreciate it.


Sat, Jan 18 9:34am · Testing for Neuropathy in Neuropathy


Thanks so much for inquiring, Lori. I hope you are still doing better. I’m fine, physically. I’m just extremely discouraged and annoyed. Before this, I never had bad experiences with finding doctors that listened to me, stayed in my corner. And came up with a game plan that we both could agreed with. The PA said that their clinic’s first step is always to rule out MS so the 3 MRIs are “medically necessary.” The scans would take more than two hours so I would need to book them over two appointments (and the two appointments are over a 4 week period). Also, When asked what the next step would be if my MRIs were clean, I was told, “Let’s just cross that bridge when we get to it.” Something about this didn’t sit well with me. And this clinic has their own MRI machines so a small part of me thinks they may be more motivated by money than patient care. And I don’t want to be just a number to someone treating me. Sorry for the rant. I will put my big girl pants on and keep searching.


Fri, Jan 17 2:46pm · Testing for Neuropathy in Neuropathy


Interestingly, this neurologist was supposed to be my second opinion. Lol. But, I have to advocate for myself so I am down for trying for a third. Thanks for your help and your advice.


Fri, Jan 17 2:19pm · Testing for Neuropathy in Neuropathy

I understand the purpose of the MRI and the need to exclude other conditions. However, I can’t understand why a simple blood test and biopsy can’t happen first. In fact, I didn’t even meet the neurologist. My appointment was with his physician’s assistant. I just don’t want to pay the astronomical insurance deductible if it’s not absolutely necessary.