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Fri, Jun 12 8:14pm · Covid delays my Mayo Pain Rehab hope in Neuropathy

@rwinney

I am so sorry to read this news. Prayers that the September plans will happen as scheduled.

Wed, Apr 22 11:34am · Have you tried the new Protocol 525 product for neuropathy relief? in Neuropathy

@terrydclaar

I most certainly will. I will likely do another update at the 6 month point, unless something notable happens before then.

Kia

Tue, Apr 21 10:08pm · Have you tried the new Protocol 525 product for neuropathy relief? in Neuropathy

@johnbishop

I have been using the original protocol since late February. My situation is different from most because I never experienced severe pain. I experienced some numbness in my left leg and some odd sensations. I had begun to experience some shooting pains when I decided to start the protocol. The numbness in my leg is better. I still have odd sensations, but not as frequently as before. I have shooting pain a couple of times a day. That said, I think it is benefiting me. I definitely plan to continue taking it. Special thanks to you for sharing your story. Your experience gave me the courage to try it. 😊

Kia

Sat, Jan 18 4:48pm · Testing for Neuropathy in Neuropathy

@beth777

No, I don’t. I was just told that I have nerve damage in my left leg based on a NCS. However, I want to be tested for neuropathy. It’s frustrating to be tested for MS without giving an explanation as to why that’s a concern and even more frustrating to be told that he won’t test for neuropathy because I don’t have symptoms in my feet. Thanks for inquiring.

Kia

Sat, Jan 18 4:44pm · Testing for Neuropathy in Neuropathy

@artscaping

I am so glad you asked that question. And the answer is a resounding no. I was told it’s “medically necessary” to rule out MS first. 🤷🏾‍♀️ All of the answers to my questions were either extremely vague or over generalizations. Thanks again for asking.

Kia

Sat, Jan 18 4:28pm · Testing for Neuropathy in Neuropathy

@artscaping

Thank you for sharing your experience. So far, I’ve only had EMG and NCS. The NCS showed damage in my left leg. I haven’t gotten past this point yet. I’m not in pain, so I don’t think the PA took me very seriously. In fact, she said, “You definitely don’t have neuropathy because your symptoms aren’t in your feet and you’re not burning.” I know from my own research and speaking with all of you that neuropathy doesn’t follow any rule book. What type of MRI did your doctor order, Chris?

Kia

Sat, Jan 18 4:22pm · Testing for Neuropathy in Neuropathy

Brain, spinal and one more that I can’t remember right now.

Sat, Jan 18 2:05pm · Testing for Neuropathy in Neuropathy

@jair19

Thank you for sharing your experience. I really appreciate it.

Kia