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Sat, Jan 18 4:48pm · Testing for Neuropathy in Neuropathy

@beth777

No, I don’t. I was just told that I have nerve damage in my left leg based on a NCS. However, I want to be tested for neuropathy. It’s frustrating to be tested for MS without giving an explanation as to why that’s a concern and even more frustrating to be told that he won’t test for neuropathy because I don’t have symptoms in my feet. Thanks for inquiring.

Kia

Sat, Jan 18 4:44pm · Testing for Neuropathy in Neuropathy

@artscaping

I am so glad you asked that question. And the answer is a resounding no. I was told it’s “medically necessary” to rule out MS first. 🤷🏾‍♀️ All of the answers to my questions were either extremely vague or over generalizations. Thanks again for asking.

Kia

Sat, Jan 18 4:28pm · Testing for Neuropathy in Neuropathy

@artscaping

Thank you for sharing your experience. So far, I’ve only had EMG and NCS. The NCS showed damage in my left leg. I haven’t gotten past this point yet. I’m not in pain, so I don’t think the PA took me very seriously. In fact, she said, “You definitely don’t have neuropathy because your symptoms aren’t in your feet and you’re not burning.” I know from my own research and speaking with all of you that neuropathy doesn’t follow any rule book. What type of MRI did your doctor order, Chris?

Kia

Sat, Jan 18 4:22pm · Testing for Neuropathy in Neuropathy

Brain, spinal and one more that I can’t remember right now.

Sat, Jan 18 2:05pm · Testing for Neuropathy in Neuropathy

@jair19

Thank you for sharing your experience. I really appreciate it.

Kia

Sat, Jan 18 9:34am · Testing for Neuropathy in Neuropathy

@lorirenee1

Thanks so much for inquiring, Lori. I hope you are still doing better. I’m fine, physically. I’m just extremely discouraged and annoyed. Before this, I never had bad experiences with finding doctors that listened to me, stayed in my corner. And came up with a game plan that we both could agreed with. The PA said that their clinic’s first step is always to rule out MS so the 3 MRIs are “medically necessary.” The scans would take more than two hours so I would need to book them over two appointments (and the two appointments are over a 4 week period). Also, When asked what the next step would be if my MRIs were clean, I was told, “Let’s just cross that bridge when we get to it.” Something about this didn’t sit well with me. And this clinic has their own MRI machines so a small part of me thinks they may be more motivated by money than patient care. And I don’t want to be just a number to someone treating me. Sorry for the rant. I will put my big girl pants on and keep searching.

Kia

Fri, Jan 17 2:46pm · Testing for Neuropathy in Neuropathy

@johnbishop

Interestingly, this neurologist was supposed to be my second opinion. Lol. But, I have to advocate for myself so I am down for trying for a third. Thanks for your help and your advice.

Kia

Fri, Jan 17 2:19pm · Testing for Neuropathy in Neuropathy

I understand the purpose of the MRI and the need to exclude other conditions. However, I can’t understand why a simple blood test and biopsy can’t happen first. In fact, I didn’t even meet the neurologist. My appointment was with his physician’s assistant. I just don’t want to pay the astronomical insurance deductible if it’s not absolutely necessary.