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Nov 21, 2019 · Liver transplant support group in Transplants

That’s exactly what I need. To have a relationship with my PCP. I’ve never had that! I’m leaning more towards Hopkins everyday. Besides,they can help with my eating disorder among other things. Hopkins would definitely be able to help with that. Their known through out the world for their eating disorder unit! Yes,Hopkins sounds better and better all the time! Thanks for helping me realize this.I love being able to share with you and the others. I have learned a lot and actually it’s starting to feel like fellowship. Something I found empty in life is being filled by being apart of this group. Thanks to all❤️

Nov 21, 2019 · Liver transplant support group in Transplants

Thank you so much for responding. I will be taking my husband of 20 yrs with me to the docs. I also need to write it down like you suggested . I will keep posting for advise and fellowship. The fellowship is crucial! Thanks to all who contribute!

Nov 21, 2019 · Liver transplant support group in Transplants

Thank u for ur kind words once again. Well, 2 things come to mind that I need from the doctor. One,what has happened to my eating. I’m never hungry and always nauseated. I eat about !00-max 500 calories a day. I can’t stop the weight loss. I feel like I’m disappearing! No doctor has helped with this. Oh,I has a colonoscopy 2 weeks ago. He said my nausea could be from excessive scar tissue. He called yesterday and said he needed another test done on me. He said he needs to investigate my stomach.(I also need someone to go and listen with me cause I forget or don’t understand. He already did an endoscope where they put a t.v. down my essopegus. Spelled wrong!. Anyway,didn’t that test check out the stomach already. I’m not sure what the test is called but I’m sure I will get the info soon. The second thing is I want them to run tests on my memory! Somehow,I don’t know how,I truly believe I’m suffering from permanent brain damage due to the HE. We will see what happens on the 26th when I see my liver doctor. I don’t even know how often I should have my blood drawn. I go 6-7 months without testing and no one has told me otherwise. They suck at following up. This appointment is with the liver team at University. After this check up I might just switch to Hopkins. Can u think of anything else I should tell them or ask them?

Nov 19, 2019 · Liver transplant support group in Transplants

Thank you for updating me. Let me know if u have questions or concerns. Now that I know you have not had the transplant,your messages make a whole lot more sense!

Nov 19, 2019 · Liver transplant support group in Transplants

Then I will do it! I will let you know what happens! Thanks

Nov 19, 2019 · Liver transplant support group in Transplants

Your job sounds great! Were you ever disabled during transplant? Before or after?

Nov 19, 2019 · Liver transplant support group in Transplants

Wow, that sounds great! I’m happy for you. Keep doing what your doing!¡

Nov 19, 2019 · Liver transplant support group in Transplants

I have not tried Hopkins. I didn’t know I could just switch like that. I’m post transplant of 4 and a half yrs. Can I do that? Just switch? I’d love to! Everything you say about being tired sounds normal to me. Everyday of my life I struggle with having no energy. I can’t stand even getting up to go to the bathroom. It gets that bad sometimes. Takes me hours in the morning to get ready for the day. I’m only 51 and I hate it! If I didn’t take meds to get me going in the morning,I’d never leave the house! The medicine gives me energy and wakes my body up enough to get threw the day. So,fatige I do understand. I think that’s spelled wrong.sorry!