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Thu, Apr 23 6:27pm · Liver transplant support group in Transplants

Thanks for that info.! Sounds just like me. Yes,the doctors have said the rashes were from the Tac. Since they dropped me to 4 mil.a day, the rashes have,for the most part,gone away. Now they are about the size of a silver dollar. I will take that anyday over what I went through before they dropped my dose. They use to get as wide and as big as my foot! I’m a size 10 wide!!

Thu, Apr 23 11:46am · Liver transplant support group in Transplants

So, considered as old as Prograf?

Wed, Apr 22 6:25pm · Liver transplant support group in Transplants

You mean Prograf is better then tacolomus? Do u know why?

Wed, Apr 22 6:21pm · Liver transplant support group in Transplants

My liver doctor told me that it was the best. I have no clue what’s better! When I was having those rashes so bad,the doctor would not change my meds , (Tac) because he said it was the strongest and “best” one out there. They were not willing to take me off the Tac. no matter how bad my rashes got. Who knows! God bless

Tue, Apr 21 8:53pm · Liver transplant support group in Transplants

By the way “Raowdy Ramsey” is my dog. My name is Ramona. My dog ,Ramsey, is a collie and a present to me after surviving the transplant. He’s been at my side every minute since! WELCOME

Tue, Apr 21 8:51pm · Liver transplant support group in Transplants

Hello Jason! We are the same age. I’m a female though! Had a liver transplant in 2015,mid summer!. I was 47 yrs. old. I’m from Maryland so I got to choose between Johns Hopkins or University of Maryland. Kinda started at Hopkins and ended at University!! Welcome and feel free to “tag along”

Mon, Apr 20 4:13pm · Liver transplant support group in Transplants

Hello there! M ame is Ramona and I’m from Maryland. I had a liver transplant July of 2015. I was 47 yrs old. I am on ad have been on tacolomus for the entire 5 yrs. In the beginning I was on 24 a day.1 mg. Throughout the past 5 yrs.,they have slowly taken me down. Now I only take 4 mg a day. Big difference. Tacolomus gave me a serious side effect. I had horrible rashes on my body. Under my breasts and below my belly button. They smelled,they were sore,had red blotches ,very ,very,very painful!! They have mostly all gone away after my last decrease several months ago!! Did u have any problems with it? My doctor said that tacolomus is the very best medicine for liver transplant!

Nov 21, 2019 · Liver transplant support group in Transplants

That’s exactly what I need. To have a relationship with my PCP. I’ve never had that! I’m leaning more towards Hopkins everyday. Besides,they can help with my eating disorder among other things. Hopkins would definitely be able to help with that. Their known through out the world for their eating disorder unit! Yes,Hopkins sounds better and better all the time! Thanks for helping me realize this.I love being able to share with you and the others. I have learned a lot and actually it’s starting to feel like fellowship. Something I found empty in life is being filled by being apart of this group. Thanks to all❤️