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Posts (5)

Sep 11, 2019 · Parkinson's along with Multiple Systems Atrophy (MSA) in Parkinson's Disease

She really was. She was a professional Girl Scout as a living, and lived it in a real way… also, her mother (another amazing woman, with a fascinating life) had an always sunny outlook…no matter what! Mother started on thickeners to varying degrees for about the last year before passing. Honey thickness at the end. We had expected much more difficultly earlier on, but it really took quite awhile to be truly disruptive.

Sep 11, 2019 · Parkinson's along with Multiple Systems Atrophy (MSA) in Parkinson's Disease

Thank you! My mom was not actually diagnosed with the Parkinson's part, but the cerebellar ataxia bit. We went to U of Iowa hospitals for several baselines before coming to Mayo. They had several initial diagnoses including alcoholism (nope), stress disorders and low blood pressure, which explained the dizziness. They told us later that she was difficult to pin down because of how slowly the disease was progressing (much slower than the expected rate, apparently). There were many symptoms of Parkinson's present, but they ruled that out fairly early on. I noticed weaving and slurred speech, as early as 2009, but I know she was presenting with confusion, poor coordination, specifically handwriting, as much as a year to 18 months earlier than that. She passed away February 2018, a fierce spirit to be sure. Of course there is an ocean liner of things I have left out, but again, if our experience can be of any help, I am happy to share. I wish I had known about this platform for answers or direction.. or just support!
To answer the last bit, yes, she did physical and occupational therapies – recumbent biking, walking of course, dexterity balls for her hands and fingers… continued until the rigidity would no longer allow movement.

Sep 11, 2019 · Post prostatectomy: What do rising PSA levels mean? in Prostate Cancer

Thank you! Relieves my mind somewhat! Next PSA in November….. long wait.

Sep 10, 2019 · Parkinson's along with Multiple Systems Atrophy (MSA) in Parkinson's Disease

I am glad to read of your husband's progress, and hope with my heart that he has continued to have successes with things. After many, many…many tests and evals, my mother was diagnosed with this disease. I am happy to share our journey or answer any questions that I can. Blessings.

Sep 10, 2019 · Post prostatectomy: What do rising PSA levels mean? in Prostate Cancer

New to group! Wish I had checked this out 2 years ago while supporting my husband! Now over e years post prostatectomy, wondering what might make psa go from all 0 to 2.6…