@leigho55 I know the whole process can be frustrating. I’m sorry you might feel bereft, or even excluded by some docs.
After more than a year of pain, I spoke with a man in a wheelchair. I explained to him how I just woke up November 8th, 2015, and – for no reason – could no longer walk. The man in the wheelchair explained to me, “That is how it happens for all of us.” For some it’s an accident that changes one’s life. For others, like me, and perhaps like you, it occurs, “For no apparent reason.” It just happens.
The key is what you do on the next day, and the next month, and the year(s) or more that follow. For me, I refuse the wheelchair and throw myself around on a pair of forearm crutches. Sometimes the pain is overwhelming. But then sometimes I can meditate myself into a “numb state” where I feel almost “whole” – But this new “wholeness” is not one that is free of pain. It is just my newly accommodated reality. Yes, it “stucks.” Really badly. But it’s also just my life now. So I just keep plugging.
In the past 15 years I’ve been through both Mayo in Rochester, and this past Autumn through Cleveland Clinic for a related, though different issue around the rectalis portion of the pelvic floor.
The journey always continues until we can’t. It’s a choice really – to go on. But not going forward is its own kind of admission that, “Some type of life” is not worth living.
I refuse to accept that. “Failing” is not a legacy I want to proclaim to others. I choose to fight – to fight hard in my own way. It may be slow, but it is my speed. I’ve readjusted my own perception a lot.
My understanding, and my experience with Mayo Rochester is all you need is CALL to make an appointment. If they require a referral to the Motility / Pelvice Floor Dysfunction Specialist (Dr. Adil Bharucha), then pretty much any type of physician – I usually use my current internist – can get you to Mayo Rochester. All you need to take is (basically) every medical file you can print out. Then you just have to wait for Dr. Adil Bhuracha to have an open “clinic day” in the foreseable future, and get the appointment in Rochester scheduled. I always ask for cancellations, or for “first available.” Then I bend my whole life toward making that date.
There is financial aid available – when you call the number I’ve listed below ask them how to get started on that if you need it.
Although the different “Mayo Outlets” share data to a certain extent, I would take issue with “Needing to start over,” through the Florida Mayo ‘before’ you can go to Rochester.
You can go where YOU want. You’re in charge. You know your body. And you know what you need to do. Okay?
Just get your internist to fill out the form to get in to see Adil Bharucha, M.D., at Mayo Rochester. It will be worth the trip.
And no one can ‘tell you’ that you can’t go somewhere to see another physician.
I cannot urge you strongly enough to seek this path for yourself and go to see Dr. Bharucha.
I’m also tagging past members @sad10514, @heidiren, @mm92599 in case they have any further insights.
You can call or request an appointment online here: http://mayocl.in/1mtmR63, for Mayo Clinic, Rochester, MN.
I got this number straight off the Mayo Rochester Appointments page online: 507-538-3270.
This next text is copied from the Mayo Rochester home page:
“Anyone can request an appointment at Mayo Clinic.
If a physician referral is required, our appointment staff will advise you. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need. You may make an appointment at Mayo Clinic in several ways: Call [this is the easiest…’hew]. Appointment Information Desk: 507-538-3270; TDD service for the hearing impaired: 507-281-9786; 7 a.m. to 6 p.m. Central time, Monday through Friday.”
@leigho55, Monday, 1/16/2017 might be a holiday (MLK) but if not then, please call them this Tuesday.
Pain is real. I feel strongly for your suffering. I’ve been in 8/10 level pain for 422 days. Trust me, I know how ennervating, maddening, even horrifying it is to live in constant pain. But at least by changing “Mayo’s” (from FL to MN) you can get someone in Dr. Adil Bharucha who understands the pelvice floor and can perhaps start you on a different, more enlightened path. Great luck. Take care, Hew.