Badges (1)


Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (81)

Fri, Mar 13 9:02am · IBS sufferers – MRT and LEAP in Digestive Health

I would be interested! I have a dx of SIBO, but what you got is what so many of us need! Someone to work with us. and then yes, things can get better! I was just talking with someone on another thread how so many of us get the "learn to live with it", when it is often possible to get relief… but it's not simple, it's a process that requires, time; communication and practitioner and patient working together. GI docs are not interested in that.

And finding a dietician who is educated and interested in these problems is not much easier. I have not found one.

Sun, Jan 5 9:08pm · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

Thanks for sharing your experience – hopefully @eden will see these comments and suggest this possibility to her MD, if it hasn't already been addressed. Definitely should be checked into!

Sun, Jan 5 8:58pm · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

I'm a little late, but thanks fiesty!, this was a good article, although I'm always sad when I read these, b/c MDs who are knowledgeable and specialize in SIBO all seem to be on the East or West coasts… no one anywhere near me. 🙁

Sun, Jan 5 8:22pm · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

Right Ingegerd – this is certainly a more likely possibility, which is why I think @eden SHOULD continue to bring this up with her/his Dr., but not immediately attribute it to SIBO.

Sun, Jan 5 8:18pm · SIBO and Rapid Gastric Emptying or Dumping Syndrome in Digestive Health

I'm just following these this thread to learn, and find it very interesting to not have H pylori from endoscopy biopsy yet have it in the stool (I assume it shouldn't be there). I know c. diff causes diarrhea (I am told), did the h. pylori cause that problem? What is gastric dumping (I'm kind of assuming emptying stomach contents too quickly? Is this something a person feel symptomatically?

In general, in listening to a lot of stories, it seems the GI world is still in it's infancy as far as diagnosing and treating most chronic problems people have.

Sun, Jan 5 4:46pm · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

I'm so glad I came back here.. I'm so anxious to talk to others with SIBO diagnosis! First off, what is BAM, and NET?

Which Dr. did you see at Mayo? I was diagnosed with SIBO at Mayo by the Dr. who did my endoscopy (via the duodenal aspirate), which is considered 'gold standard'. Sadly the Dr, who is a fellow; who was assigned to my care doesn't seem to believe in it, and when I asked to do the treatment protocol for it, he got all huffy; so I'm now without a GI doc, have gotten a local friend to write prescription for me to treat myself best I can based on the literature. I asked the GI dept if they had a doc that was familiar with SIBO, and never got an answer. I'd like to see one if they exist since I've had all my testing there. Otherwise I'm looking into Johns Hopkins, the only SIBO center I can find that takes out of state patients.

Do you have Carcinoid tumors also?

How did the Levaquin work (i'm assuming maybe you finished that now). I haven't taken that one! Look forward to hearing from you!

Sun, Jan 5 4:31pm · Small Intestine Bacteria Overgrowth (SIBO) in Digestive Health

Hi Colleen and @eden I have a diagnosis of SIBO and have done a lot of research (have a health care further nerdy science background 🙂 ) . I've never experienced light headedness after meals, nor have I heard others report that, or seen it listed as a symptom specific to SIBO. We do know of course that everyone is different, and if you experience light headedness 2 hours after meals, you obviously do, I think you might have to be cautious about immediately attributing that to the SIBO. Obviously, if your SIBO is treated and you have some kind of testing to document it is better, and the light headedness also goes away, then you could link the two.

"This is almost certainly the food being fermented by the mass of bacteria in the small intestine and the resulting d-lactic acid, and other products of fermentation including alcohol, circulating in the bloodstream and affecting the brain". There is absolutely no scientific evidence that any of this is happening, particularly any of these substances getting into your blood and your brain. Research into SIBO is still young, and I lot isn't known. While there is speculation that bloating and gassiness could be caused by action of the bacteria on food, this doesn't necessarily mean they are fermented, and nothing has ever shown this, nor that such substances are being produced. Even if they were, and diffusing into the bloodstream, all blood from the GI organs goes to the liver first, via the hepatic portal vein, and those things would detoxified. Our body also is very adept at keeping a tight pH in the blood, and excess lactic acid would be converted into a closely related substance to keep the pH constant. Anyway, none of these substances would get anywhere near your brain. Nor to your muscles to cause any soreness (and would not be present in any amount great enough to do so).

"There are many pages online that purport to describe the symptoms of SIBO."
Yes there are, and this is one syndrome that people really need to be careful with; because sadly there seems to be more BAD info compared to good info with this problem. I suspect b/c the medical community has been so slow to get on board with taking SIBO seriously, it's gotten 'hijacked' by naturopaths, chiropractors, self-appointed experts and all kinds of quacks. Promoting things like you described above. People really need to read carefully, and critically think. There are some patients who are good sources of information. When someone calls themselves "Dr." , check into what kind of Dr. they are. Chiropractors have absolutely no education and training in GI issues. Unfortunately, I think it becomes a vicious circle. In my experience, the medical community, even my Mayo Dr., do not take SIBO seriously, I think partially b/c they see it as something that is associated with quackery.

SIBO and "leaky gut" are two separate issues, and "leaky gut" is another highly controversial issue, and hasn't even been determined whether or not this is a 'real' thing – there is evidence that the permeability of the small intestine likely can be affected by various disease processes. However, many claims made by some sources are just not valid. I won't go into great detail now as this is already getting long. Both of these problems are not 'diseases' in themselves, but things that develop secondary to another problem (and then become a problem). Hence, SIBO will re-occur if the underlying cause cannot be remedied, which is why it is so hard to treat. Often that cause is not known, or can't be 'fixed'.

There is no evidence that SIBO or leaky-gut can cause muscle soreness. However, many people who have SIBO have other medical problems, sometimes many. I'd explore other causes of your muscle soreness and light headedness because it seems a possibility there could be some other cause.

Colleen, I'm not sure if this is where I should be writing this .. or in that other place, but maybe you can move it?

Oct 19, 2019 · Has anyone been diagnosed with Abdominal Wall Pain in Chronic Pain

Go to a Physical Therapist!! Just get a general referral, and let them evaluate you! You likely have a lot of tightness/issues that you aren't even aware of. The injections usually don't help because it's not as simple as just numbing pain in one very localized area. If your pain is (and I say IF) musculoskeletal in nature, it likely is the entire thoracic muscles/tissues that are affected (some more than others). The therapist can help localize the sources of your problems and help your loosen tightened areas and teach you ways to help maintain that on your own.

I think anyone who has had GI issues for a long time, likely has tightness/tension in abdominal wall, even back muscles, because we tend to 'hold' areas of pain tightly.

See another thread on here that just started about MFR, myofascial release,one technique used by therapists.

Most MD's don't understand or have any clue what PT does. I'm surprised you were diagnosed with a musculoskeletal problem and NOT sent to PT! Ask your doctor for a referral, if he/she won't give you one (I can't imagine they wouldn't), maybe you have a primary care or other doctor who would.

It can't hurt, you will learn a lot of things that are helpful, and if it doesn't help at all, will rule out having a musculoskeletal cause for your pain.