About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (8)

Dec 22, 2019 · Can't get lyrica don't want withdrawal help in Chronic Pain

They don’t have it under a different name? I know Bangladesh has it but it’s called something else.
If they don’t have that at all then the only suggestion I can think of is gabapentin, but I’m NO MD!!!
It’s just what I’m thinking when I was in Bangladesh.
Or u can check with the pharmacist their, they should be able to help

Dec 11, 2019 · Not diabetic with Chronic Pain with Idiopathic SFN, tried everything in Neuropathy

Thank you everyone for the kind words, it means d sad o much to me that I’m not in this a lone. I just told my MD that I’m stopping the morphine because I felt it didn’t do anything for me at all maybe lasted 40 minutes and it was a long lasting medication. They r going back to the hydro. 4 times a day which had some benefits but it’s just so hard for me to accept this condition at my age with 2 daughters that want to do so much with me. I cry at night because I can’t stand more than 10 minutes just to bake cookies, now I noticed I’m having a hard time driving. The only time I don’t really
Have pain is if I’m in bed. What kind of a life is this? I was dreaming of having this wonderful home we live in now that I can’t keep up with to clean, take my girls to the park to play, etc. go Xmas shopping with them. I mean they r now seeking counseling because of me, one tried to comment suicide. I’m having a really hard time this week.
I’m trying to up my magnesium, I’ll try the CBD/THC, acupuncture starts on Monday, see if that helps again? Which I told my pain management it only helped with my anxiety but it’s worth a shot, juicing carrot and celery because read that’s supposed to help, but I guess I have expectations that it will go away and I can’t accept it that I will have this forever.
I do meditation daily, restorative yoga, my sister is a yoga instructor so she helps out a lot, but it’s like a never ending battle and I’m still trying to find a job, and during the interview my pain takes my thoughts and I can’t concentrate, just over sucks!!!
I hate when people say I’m sorry I wish I could do
Something, yes u can chop my legs off!!!

Dec 6, 2019 · Not diabetic with Chronic Pain with Idiopathic SFN, tried everything in Neuropathy

I am running out of ideas, I have researched this disease inside and out. I have tried everything under the sun, From holistic acupuncture, chiropractic, to foods, to medication, PT, you name it I have probably have tried it.
I am now seeing a Pain Psychologist, Pain Management, a regular psychologist for my depression and anxiety. I noticed as soon as I get on my feet my legs start to hurt, meaning my calves are burning, throbbing, aching, and my feet feel like they are swollen but they’re not. They feel like heavy metal that I can’t lift my feet. Sometimes in the car, I feel like I can’t drive anymore and I am only 43 years old. This started when I was 35 I think, but wasn’t fully diagnosed or I should say didn’t believe me until 5 years ago after my small nerves are completely dead now.
I have even tried Medical Cannabis it gave me major panic attacks at first, but now I think my body is getting used to it, but it has to be only the THC and it only lasts for like an hour and that’s taking 4 pills. I am also on 1 morphine pill which is long-acting, more like not. Takes a little bit of the pain away for like 40 minutes if I am standing, then 2 hydrocodone later in the evening and afternoon. takes the pain away a little bit but not enough to enjoy life with my family, can’t walk up and down the stairs, can’t clean the house, or stand very long. the girls want me to take them shopping, but I can’t. they don’t understand and I get more upset at myself.
I researched medications that will work, I can’t seem to find anything, or my Pain management MD we don’t have the right combination or something isn’t right. I don’t understand how these people in the SFN foundation can go hiking, go on vacations with their families, etc. I can lye in bed and that’s about it.
My provider says to pace myself, but it’s kind of hard when you have two kids and a family to run and now I am trying to find a job. Hopefully, more PT, because I don’t think I can do an FT job now and come home and clean, cook, and spend time with the kids.
Please help with what meds have worked and not. I have tried Lyrica, Gabapentin, the antidepressants, some made my RLS worse at night. Nothing is taking this 24/7 pain away and I just want to cut my legs off seriously.

Dec 4, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

I have Idiopathic Small Fiber Neuropathy, Intractable Pain, RLS, chronic pain, along with that depression, anxiety, ADD, etc. I have finally tried Medical Cannabis and I didn't have a very good experience like everyone did. I was expecting, YES! my pain and everything is going to go away. Nope, I had such bad Panic Attacks, anxiety from it. I have tried the vaping, to the creams, to everything. I feel like they have my diagnosis wrong because nothing seems to work at all. They say the CBD oil is to help with anxiety but not for me it didn't. I am telling you, I think my body needs to be studied on, seriously. If I take just the THC it helped a little bit with the pain, but still received the anxiety part and they wouldn't give me anxiety medication to take to cover it up until my body would get used to it. I have never tried Cannabis before. Now they have me on Morphine 15mg once daily, with 2 hydrocodone in the evening, still in pain. The main reason to get on cannabis was to get off as much medication as possible not to add to it.
I have a family to run and they said I need to slow down and I need to pace myself, it's hard when you have two daughters who want to go, go and go. who doesn't understand? I have a home to clean, otherwise, I get even more frustrated and depressed when not cleaned, and get no help. Sorry I had to vent!!!

Aug 13, 2019 · Undiagnosed...something is wrong. in Chronic Pain

I would look into idiopathic small fiber neuropathy as well because that is what I was diagnosed with and they didn’t believe me with my pain. With my age and I look just fine on the outside, they just shoved me away, my neurologist said if caught in time I could have reversed it in time but now they are completely damaged. So my old neurologist should of listened to me and I should of been more aggressive because now I am living with this condition for the rest of my life, so please be aggressive and listen to your body and keep fighting.

Aug 13, 2019 · Undiagnosed...something is wrong. in Chronic Pain

I feel you, I went through the same thing with providers, but don’t give up. There are providers that will listen and will believe you. You just need to tell them what you have tried and who you have seen and done.
Have you tried epsom salt baths for your muscle pains?
I would try too see a specialist in Neurology? I know they are not the best to work with but if u find the right MD. Which state do you live in? I know dr. Manousaukis is good at the University of Minnesota.

Aug 13, 2019 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Water was the best therapy, so I would go to the lake when ever I could with my daughters. The only thing that I have noticed that is even a little bit noticeable is my food intake. No processed foods and sugar intake has to be extremely limited. If I could be in bed 24/7 that would help a lot but that’s not being realistic.

Aug 12, 2019 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi,
I’m only 41 years old mom with 2 daughters who has finally after years of being used has a pin cushioned been diagnosed with chronic pain, idiopathic small fiber neuropathy, inflammatory neuropathy, depression and anxiety. I have suffered from pain the last 5 years on my own until I found a MD who believed me that I was in so much pain and I couldn’t do anything with my daughters, go to the park to play and there question was why I couldn’t be like the other moms. I didn’t know how to answer that question, now I’m getting help, but my husband and I just lost our jobs and no health insurance. Just has I was getting things in order we lost our insurance. I’m on Lyrica which so expensive, pain medication, anxiety, etc. where do to turn to because Lyrica I need to ween off of? Just too expensive anyways that is my story and they still don’t know where the neuropathy is coming from, oh, on to of it, I have RLS.