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Posts (3)

Tue, Sep 3 12:38pm · Myelodysplastic Syndrome (MDS) in Blood Cancers & Disorders

My husband was diagnosed 8-2018. He receives weekly N-plate shots and bi-weekly Aranasp injections. He was also diagnosed with ITP at the same time so his platelet count is low. Weekly CBC's. His platelet count is in the 40's..RBC is at 3 HGB's at 9.5 and that is the highest it's been in a year. WBC holding steady in high 5 area..Neutrophils holding their own in mid to high 4's. He has had around 6 blood transfusions in the last year. 3 rounds of Rituxin last year. He was going to start a chemo shot…1 week on and 3 weeks off but his counts dropped suddenly so that is back burnered for a while because before it works it drops your counts. I wish you success in your treatment my friend. Keep the faith. The wife

Sat, Aug 10 12:12pm · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

It started with a little nose bleed that persisted for a couple weeks. He had some blood work done and that night he was told to go to the E.R. Transported the next day to Rochester and diagnosed within a week. Bone marrow and lots of blood tests. Platelets got as low as 2K

Fri, Aug 9 8:54pm · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

My husband has the JAK2 but was diagnosed with both ITP and MDS all at the same time.