Member has chosen to not make this information public.

Groups (1)


Member not yet following any Pages.

Posts (3)

Nov 11, 2019 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Hi! Hardenbeg. I don’t have the typical symptoms either, my weight fluctuates and my pain is not just when eating but randomly happens whether I eat or not and some days I can be almost without pain for hours. I have been confirmed with imaging of the MALS yet I live on the east coast of the US and no one is familiar with MALS in my area and are hesitating to say that my pain is caused by it and I have not found a surgeon to operate. I’m trying to convince my insurance to allow me a third and fourth surgical opinion outside my area with knowledgeable doctors because this is horrible! I hope you have luck in your search. This site is helpful!

Aug 9, 2019 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Thank you for the warm welcome. I’m nervous but hopeful that I can manage this. I’ve been keeping a food and activity journal trying to figure out a best practice until I get some more answers. These conversations have been very helpful to read.

Aug 7, 2019 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Hi All. I was just diagnosed two weeks ago. I spent 8 days in the hospital and had so many tests but MALS was the suspected diagnosis from the initial CT scan in the ER. I’ve have these recurring episodes of gnawing burning pain with eating that make me avoid it every few months for the past few years, along with almost daily nausea and some other issues that most doctors just wrote off as nothing, an ulcer ( none ever showed up), lady problems… so finally having a diagnosis is nice but I’m still lost. I’ve been reading and reading and reading. I’m in Delaware and I want to find a specialist. I’m meeting with a gastro in 2 weeks and one of the 12 doctors on my hospital team next week. But this was all new to them as well. It’s nice to find this page ( I saw it on the foundation website.) Thanks for any o do and support.