Hi! Hardenbeg. I don’t have the typical symptoms either, my weight fluctuates and my pain is not just when eating but randomly happens whether I eat or not and some days I can be almost without pain for hours. I have been confirmed with imaging of the MALS yet I live on the east coast of the US and no one is familiar with MALS in my area and are hesitating to say that my pain is caused by it and I have not found a surgeon to operate. I’m trying to convince my insurance to allow me a third and fourth surgical opinion outside my area with knowledgeable doctors because this is horrible! I hope you have luck in your search. This site is helpful!