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Aug 2, 2019 · Undiagnosed Autoimmune with back pain, spasms, and stiffness in Autoimmune Diseases

Just remember that everyone is different with this disease. Just because you don't have the spasms doesn't mean you don't have the disease. Most of my spasms were happening at night and I didn't know it. We went on vacation and were sleeping on a regular mattress and I woke my wife up with a major spasm. So it is still worth checking into.

Aug 1, 2019 · Stiff Person Syndrome in Brain & Nervous System

The this g you have to remember with this disease is that everyone is different. One treatment may work for me but may not work for you or whoever. The medication is one of the keys. Valium is a common med but it is not a long lasting drug so you end up taking it more often than normal and become addicted. Clonozapam lasts longer so it isn't as dangerous in that aspect. Gabapentin is another along with baclofen. I also take immuran

Aug 1, 2019 · Stiff Person Syndrome in Brain & Nervous System

I've been on IVIG for 2 years and they have slowed progression to an extent. Have discussed other options at the last appointment.

Jul 31, 2019 · Stiff Person Syndrome in Brain & Nervous System

I was duagnosed3 years ago. Have been on Ivig I fusion of gammagard for 2 years. The doctors think I've had this for 12 plus years. Any questions just ask.

Jul 31, 2019 · Undiagnosed Autoimmune with back pain, spasms, and stiffness in Autoimmune Diseases

I am a 45 year old male and I have had similar symptoms. Find a neurologist that s familiar with GAD 65 and ask to see if they can do an antibiotic GAD 65 blood test. I have a disease called STIFF PERSON SYNDROME and those symptoms are relatable. The disease does affect women more often than men and it is very rare. I pray that this isn't what you have but I hope this helps put you in the right direction.