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Wed, Jan 15 4:07pm · Autoimmune Pancreatitis in Autoimmune Diseases

Dr gave me no information on Creon. Just the dose and when to take it. It manifested by weight loss, fatty stools, amylase normal, lipase a little elevated..149. Had CT scan…showed inflammation. Had an EUS with biopsy. Showed edema of head. Biopsy sent to Mayo. Neg. for cancer. GI sent me to oncology surgeon for 2nd opinion on the biopsy. Neg. for cancer. He put me on steroids for 2 weeks and did an MRI. Showed inflammation gone. He diagnosed me with AIP because he said Steroids is the only RX for AIP, they won't work on any other kind. GI put me on 2 more months steroids, and CT showed inflammation all gone, just mild atrophy of pancreas. I feel like I do have it under control. Wondering if I have to be on Creon for life? Luckily didn't develop diabetes. Louise

Wed, Jan 15 12:51pm · Autoimmune Pancreatitis in Autoimmune Diseases

Does anyone have an auto immune pancreas? I was diagnosed with it. Presently on Creon. Last CT Scan showed partial atrophy of the pancreas. Inflammatiion gone. Is anyone else on Creon? Is it for life? Also diagnosed with Pancreatic Insufficiency. Lost 18 lbs., but gained 5 back since on Creon.

Dec 14, 2019 · Getting Off of Omeprazole in Digestive Health

None! I feel the same as when I was on Omeprazole.

Dec 12, 2019 · Getting Off of Omeprazole in Digestive Health

CVS told me that Ranitidine was ok. Zantac is the bad one, and they took it off their shelves. Hope they are correct. I took Omeprazole for 16 years, and developed pancreatitis. Did a lot of research and found that Omeprazole can cause pancreatitis.

Dec 12, 2019 · Getting Off of Omeprazole in Digestive Health

I was on Omeprazole for 16 years. Developed pancreatitis. Dr. wasn't sure if that was the cause. Switched me to Ranitidine, generic for Zantac. I am doing fine with it!

Dec 1, 2019 · My mom has a elevated amylase and lipase but pancreas appears normal in Digestive Health

Hi Genie,

So glad your labs improved, especially Lipase. That's the one that helps with digesting fats. You sound so much better.
Glad you enjoyed your grandson. Did you have a nice Thanksgiving? We did! I am feeling ok. Just tired a lot. Well, hope
you keep improving. I am praying for you. Louise

Dec 1, 2019 · My mom has a elevated amylase and lipase but pancreas appears normal in Digestive Health

Hi Genie
So glad your amylase and lipase came down. Lipase is almost normal. That is the one that digests fats. You sound much better. I am praying for you also, that your labs keep coming down and you get better.
Glad you enjoyed your grandson. Hope you had a nice Thanksgiving. We did! I am feeling ok. Just tired a lot. Louise

Nov 25, 2019 · My mom has a elevated amylase and lipase but pancreas appears normal in Digestive Health

Genie, How are you? Did you repeat your blood tests yet. I am hanging in. Still having some bad days. Still taking my Creon and gained 5lbs back. Happy for that, as I lost 18. Did your grandson come visit and did you have a good time?