Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (6)

Oct 2, 2019 · Best Shower heads for MAC in MAC & Bronchiectasis

Steve, I read the letter from Bellevue Hospital, which looks promising. However, did you specifically run water testing for mycobacteria (NTM)? Labs that specialize in this do it and it takes 4-6 weeks to culture (and possibly more to determine specific mycobacterium species). Also, water samples should be taken from multiple taps @multiple times to be valid. I'm familiar with this because we had our home water tested for mycobacteria (NTM).

Oct 1, 2019 · Best Shower heads for MAC in MAC & Bronchiectasis

Would spraying with hydrogen peroxide work?

Oct 1, 2019 · Best Shower heads for MAC in MAC & Bronchiectasis

@stevesunshine20 – Does Shower Clear have "large" holes or small-medium holes? My understanding is that to minimize NTM, the holes in the showerhead should be as large as possible to reduce aerosolization.

Sep 23, 2019 · Whole-House Air Purifier Systems in Lung Health

@merpreb, Hi, we haven't decided on a whole-house air purifying system as yet. We know we don't want one that is an ionizer, hydrogen-peroxide, or plasma-based because they emit some degree of ozone. Some UV-based air purifying systems produce ozone; some don't (if the bulb is coated?) – so I'm still researching this. Also, the UV-based system seems to need 2 units – one with filters and UV and a separate UV light for the coil. Some research questions the effectiveness of using the UV-based system, even if it doesn't produce ozone. The more I research, the more complicated it's becoming and more red flags (where you install it is also important, the wavelengths, etc.). I'm not sure if there is actually a whole-house air purifying system on the market that doesn't have caveats for people with lung issues and that actually will purify the air of bacteria (including NTM), viruses, mold, etc. It has to be very strong to do that and possibly the heat/AC fan has to run continuously(?), which I don't want. So, I continue to research on this topic. I'm surprised more people haven't joined in the conversation!

Sep 17, 2019 · Whole-House Air Purifier Systems in Lung Health

Has anyone found a safe whole-house air purifier system that is installed in (or around) your in-home HVAC system? My HVAC company recommended the Reme HALO whole-house in-duct air purifier by RGF, but I was concerned to learn it’s an “ionized hydro-peroxide” output that includes some level of ozone being emitted into the air from what I read in their literature/site and from talking to the manufacturer. They say it’s “safe” but I’ve read people with lung problems shouldn’t breathe in any ozone (I have Bronchiectasis). I also couldn’t get a straight answer as to whether the UV light is part of the Reme HALO or a separate UV bulb that shines on the AC coil (called the BLU QR UV stick light) or whether both have a UV component. I’ve read that UV in whole-house air purifiers (and whole-house water systems) is safe for humans – I’m more concerned about whole-house air purifiers that emit ozone. I’m also looking at whole-house UV purifiers without ozone (e.g., APCO-X, Purity, Field Controls Trio). All of these products are hard to decipher. I live in a townhouse with a small space for the HVAC system. I have 2 small Winex air purifier floor units (from Costco) that I use but I’ve learned that isn’t enough to remove harmful mycobacteria and mold spewing into the air from the HVAC air ducts and the AC coil where moisture builds up. If you have knowledge and experience about these systems, I’d appreciate your thoughts!

Jul 20, 2019 · Best Shower heads for MAC in MAC & Bronchiectasis

There is conflicting information that can be confusing regarding showerheads and NTM. Some members are talking about using Shower Clear's "all-metal" showerheads as being safer than plastic showerheads for minimizing inhaling NTM in the shower; however a more recent study I read (Sept. 2018 – see article info at end) indicates that mycobateria in plastic showerheads were on average "two times lower than in showerheads that were constructed of either metal or a mix of metal and plastic components." (You can find the research study if you Google: Ecological Analyses of Mycobacteria in Showerhead Biofilms and Their Relevance to Human Health, by Matthew J. Gebert, Manuel Delgado-Baquerizo, Angela M. Oliverio, Tara M. Webster, Lauren M. Nichols, Jennifer R. Honda, Edward D. Chan, Jennifer Adjemian, Robert R. Dunn, Noah Fierer
Mary Ann Moran, Editor, DOI: 10.1128/mBio.01614-18