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Posts (21)

Sun, Jun 28 4:57pm · Ibrance and Liver Lesions in Breast Cancer

Hi Trivia. Colleen also tagged me on your post. I'm sorry but I can't be much help when it comes to liver lesions. My metastatic cancer is to the femur, humerus, lungs and skin. I'm on my 14th cycle of Ibrance with Letrozole for IDC. I've had good results so far, with CT Scans done every 3-5 months. My lung mass shrank a great deal, bones are stable or better, skin lumps cleared up right away and breast mass wasn't even mentioned on last Scan. Side effects seem to be my enemy mainly. I never had nausea with Ibrance but after 8 – 10 months started hair thinning, aches in my joints and pain in my rt. heel, eyes watering. I'll take those over progression. I hope you see some good results with this but as my Onc told me "you must be patient, you won't see immediate results". I'm not going anywhere.

Sat, Apr 11 3:49pm · Are you getting cancer treatments during COVID-19? in COVID-19

Your boyfriend is very lucky to have you. I know sometimes I don't show my husband the gratitude he deserves, going to work everyday and now offering to do the grocery shopping as well. I'm still pretty active/independent and like to do things for myself. Is there possibly a friend you might enlist to help with the shopping while you are at work? Then you could take it to him after. Or maybe you could have your boyfriend try to do an online order, like Walmart, and he would see for himself how many items keep coming up "out of stock". If you aren't out to see for yourself, it's hard to imagine how ridiculous things have gotten at the stores. You hang in there, breathe, and just do the best you can. Take care of yourself.

Thu, Apr 9 9:01am · Breast Cancer Support Group FL: Coffee and Conversation in Breast Cancer

I've asked Admin to flag this post. I believe this person is trying to scam all of us that have cancer. Please don't buy into it. Be safe, be smart.

Tue, Mar 31 11:04am · Are you getting cancer treatments during COVID-19? in COVID-19

I'm so sorry for what you're going thru with your mother. I think we need to open up a discussion on how we feel we are treated sometimes by doctors. I'll be 1 year post-diagnosis for stage 4 breast cancer on 4-15. When the doc got my scans back showing it in my lungs and bones he called me. I told him from the start (he asked) if I want it "straight", no sugar-coating. But telling me that he'd try to get me 2 years threw me for a loop. Fortunately you can't tell I'm sick (maybe a little but not much-thinning hair). I don't think I feel different and I'm willing to fight like heck to stay on this earth. A little positivity would go a long way. You stand strong with your mom and I wish you all the best.

Mon, Mar 30 6:08pm · Are you getting cancer treatments during COVID-19? in COVID-19

Does one of our Volunteer/Mentors know if these cancellations are in order to keep us safe, isolated at home, or are they to free up Medical Personnel? I've had my re-staging CT (due between March and May) approved by insurance but wondered if they would schedule it. I don't understand palstead's Brain MRI being cancelled. That would seem quite important. I know how these scans can cause much anxiety and no one wants to put them off any longer than we have to.

Sun, Mar 29 10:07am · Are you getting cancer treatments during COVID-19? in COVID-19

Hi Leonard. I was just reading thru posts and saw yours. I'm not sure where you are. I'm in rural CO. We have 22 positive cases and 1 death of an 80+ yr old woman with other health conditions….within ours and 2 other counties, total. Trying to self-isolate but it is difficult to get basic necessities and food items to hold over from just one source. Walmart did a $35 or above order for free except that they only filled less than half my order. I ended up going to 5 stores over 10 days (hard to self-isolate when you have to search all over town for what you need to isolate). Very frustrating. I laughed at your candy comment. In trying to get things I need I kept forgetting my comfort candy. I won't bring myself to go out just for that even though it's tempting. You take care.

Fri, Mar 27 2:45pm · Are you getting cancer treatments during COVID-19? in COVID-19

I'm laughing, but I know you will understand. In December I had skin cancer removed from each thigh and my right shin. Each had about 10-11 stitches. The doc "sadly" told me I'd have a scar on each and a little lumpy for awhile. I didn't care. Battle scars, I say.

Fri, Mar 27 10:24am · Are you getting cancer treatments during COVID-19? in COVID-19

I hope it goes well. i have a fairly large area by my collar bone that I'm not looking forward to having removed. It's been there for a few years but getting bigger. Took breast cancer for me to start taking care of all of the other "little" things, as I call these annoyances. I'd rather put it off a bit until all of this virus stuff has passed. Too much risk for infection due to low white blood cell counts from my other treatment. Again, I hope all goes well with your Mohs.