amom7, thanks for your info as it reassures me that I do have this weird condition, or that normal CPR might not mean that I don't. I think I need another opinion based on the PubMed studies and now your history. Does anyone know why taking Prednisone for an extended time causes PMR to eventually go away? I did know of one lady who was never able to completely stop Prednisone, however at a very low dose. I'm really frightened at following this NP's directions to continue weaning off at this rate. Anyway, thanks for replies.