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Thu, Jul 11 9:58pm · Polymyalgia rheumatica in Autoimmune Diseases

amom7, thanks for your info as it reassures me that I do have this weird condition, or that normal CPR might not mean that I don't. I think I need another opinion based on the PubMed studies and now your history. Does anyone know why taking Prednisone for an extended time causes PMR to eventually go away? I did know of one lady who was never able to completely stop Prednisone, however at a very low dose. I'm really frightened at following this NP's directions to continue weaning off at this rate. Anyway, thanks for replies.

Mon, Jul 8 12:37pm · Polymyalgia rheumatica in Autoimmune Diseases

I'm being seen by a Nurse Practitioner to a rheumatologist. When I told her of the PubMed studies, she wasn't aware and suggested I see the rheumatologist she works under, but can't get appt till October. I've considered getting a second opinion if I can get an appt with someone else. My main physician did other tests and ruled out Lupus and Fibromyalgia. Thanks for the article – will read now.

Mon, Jul 8 11:49am · Polymyalgia rheumatica in Autoimmune Diseases

Regarding diagnostic blood tests: Does anyone know of PMR being diagnosed with 3x's normal C-reactive protein results and normal Sed Rate results? In February I started 15 mg prednisone and extreme pain in shoulders, arms, hands, hips and legs disappeared. I could barely move. The C-reactive protein rate dropped to the highest normal level. Dr. began lowering dose every month, and C-reactive protein began raising slightly. I'm now on 8 mg and symptoms began returning at 10mg and continue to get worse. Because the C-protein hovers just above normal, Dr now questions PMR diagnosis and insists I continue to taper even though symptoms are increasing. I read studies at PubMed that say 1-4% of PMR patients can have normal tests. Does anyone have thoughts on this?