About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (8)

Fri, Oct 4 3:29am · Sudden hearing loss and an echo in Hearing Loss

Hi Jackie……. I have been on steroids four times and have the same reaction as you. Very high energy, not sleeping for several days. The first time I took steroids I was canning tomatoes and making jam at 3am, vacuuming the carpets at 4am and so on. Also I could not stop talking. I did not realize it was from the steroids and continued to take them. One day I went to the mall, filled the trunk of my car with my purchases, then had no memory of buying anything. Saw my doctor and she lowered the dose and shortened the duration. I have friends who have had these same reaction to steroids so you are definitely not alone. That time the steroids were for a different issue but when I took them for sudden hearing loss a lot of my hearing came back. Unfortunately that was temporary and I have lost more in the last few months.

My point is be careful! Especially when stopping the steroids be sure to taper off very gradually. This is very important and not all doctors explain what can happen if you just stop. Ask lots of questions. Good luck to you and I hope that you regain all of your hearing.

Tue, Sep 10 10:10am · Balance issues and hearing loss in Hearing Loss

Thanks for your reply. I find that people are empathetic at first but I think they forget. One starts talking to me while walking ahead or behind me, my physical therapist talks with me from behind a mask, one doctor looks at her computer while talking, lunch with friends is impossible when side conversations break out. Even my husband talks to me from another room. I am constantly reminding others of my situation and sometimes I think they get tired of hearing it. Every day is difficult and you always have to be advocating for yourself. Sometimes it seems easier to just stay home but I know that is not good. I have a sign on the wall that reads "taking it day by day" and I read that every morning. Seems to help. Judy.

Tue, Sep 10 9:56am · Hearing Loss: Come introduce yourself and connect with others in Hearing Loss

Jim…. good for you for learning ASL. I am looking into studying that as well. My daughter wants to take classes with me which would be great since I will have someone to sign with. Are you doing classroom learning or is this on your own or online? I've read that learning a new language does help your brain as well. I am afraid of eventually losing my hearing completely and want to be prepared for this. Good luck to you. Judy

Mon, Sep 9 9:09am · Balance issues and hearing loss in Hearing Loss

I have fallen several times in the last three years the last time breaking my wrist. I am still doing physical therapy for the wrist and also have a PT for my balance issues. I have to lower my expectations because I was hoping for a cure with the vestibular exercises. They help some and at least I feel like I am being proactive in my treatment. Lately I have had other health issues and find myself very discouraged. Too sick to do the balance exercises for a week and I really noticed a difference. You have to do these every day and for the rest of your life. I read the postings and am impressed with how positive everyone seems to be. There are too many days when I am not positive at all, just tired. Is anyone else dealing with depression over the changes in their life?

Tue, Jul 9 11:21am · How does hearing loss change you? in Hearing Loss

Joangela ………Like you I was a very social person. Not so much now and I miss it a lot. It just so frustrating to miss so much of the conversation. What I do hear takes me a minute to figure out and when I start to respond the group is on to another topic. Today I am going with some friends to lunch and then a movie. Although I have been wanting to see if I can still enjoy a movie I am also kind of dreading trying to keep up with the conversation in the car and at lunch. I'm also afraid if I don't go to things gradually I will no longer be asked.

Sun, Jul 7 10:57am · Cochlear Implants in Hearing Loss

Thank you so much Christina. You are right that keeping up socially is exhausting……. so much easier to just stay home but I do not want to give in to that!

Sun, Jul 7 10:51am · Cochlear Implants in Hearing Loss

Thanks for your reply. I don't know what "telecoils with assistive technology" means. Is that when you use your phone to adjust the hearing aids?

Sun, Jun 16 10:13am · Cochlear Implants in Hearing Loss

I'm very happy that your CI has been so successful. I just joined Mayo Connect today…..want to learn more about my options to treat my hearing loss which happened suddenly 3 years age. At the point now where hearing aids do not help much but my docs have told me that hearing aids have to be completely useless before I qualify for a CI. Were you also told this? Profound hearing loss and also major balance problems have been a real life changer for me and I miss my old life so much. Thanks for listening. Judy