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Posts (12)

Tue, Feb 18 4:43pm · Problems 3 months after colon resection surgery: Help in Colorectal Cancer

Yes I’m not the typical patient. Anything that could go wrong has gone wrong. The first leak was caused by a staple that came loose at the connection site. The I developed abscesses after each of my surgeries. With the most recent surgery, they aren’t sure. It could have been a small Knick to the bowel or it could be an unknown cause. I do have ulcerative colitis and have had it for 25 years. That causes inflammation in your colon (it’s an auto immune disease). My colon cancer diagnosis was a complete shock as I was very healthy and a fitness fanatic (ran 5 miles a day and attended barre class 5 times per week. Very healthy so I was shocked to hear I had cancer. I was 51 when I was diagnosed and had I not been as physically fit, I wouldn’t have recovered as well as I did. With my most recent hospitalization, I was on a vent for 9 days and in ICU for 12 days. I couldn’t even stand up on my own, but I was determined that I would come home instead of a rehab facility so I forced myself to walk and show them I could do stairs! I have a good friend who had her sigmoid removed because of diverticulitis. She said it took over a year to feel normal. Good luck

Tue, Feb 18 3:50pm · Problems 3 months after colon resection surgery: Help in Colorectal Cancer

I had my sigmoid (and some other parts) removed via open surgery on 5/6/19. Since then, I developed an anastomtic leak (5/16) SBO (8/19 caused by adhesions—this was resolved with laparoscopic surgery) and had another bowel resection on 11/6 after I had a bowel perforation. This was caused by an unconfirmed entrocutaneous fistula. I developed sepsis as the result of another leak and was hospitalized for five weeks. In my experience, it has taken a lot of adjustment, and my digestion still isn’t normal. Part of this is because I underwent chemo which caused some digestive issues, but stopped chemo in 8/19. I am still struggling with bouts of painful
Constipation. It makes me fearful of another obstruction. I think a lot of it has to do with what I eat because I’m typically a healthy eater and a lot of healthy foods are troublesome. My nutritionist said to take 1/2 to 1 dose of miralax daily if needed. I have a lot of bloating after eating and I’m guessing this may be my new normal. Drink a lot of fluid and try the miralax. If you have other specific questions I will be happy to answer

Fri, Feb 7 8:14am · Sigmoid colon resection: What to expect for recovery? in Colorectal Cancer

The tingling pain is probably normal. Your body starts regenerating those nerves, and unfortunately, your body also naturally forms
Adhesions. I have had three resections and pain around my belly button happens a lot. I’m 3 months out and still have it

Fri, Feb 7 8:10am · Sigmoid colon resection after complications in Colorectal Cancer

I wish I could offer some words of wisdom, but I can’t. I hope they figure it out. It sounds awful!

Nov 19, 2019 · Crohn’s disease and PSC - Questions about medication in Digestive Health

I don’t have Chrons, but do have UC. I had surgery to remove my sigmoid and my cecum (along with appendix, Fallopian tube and ovary) because I had a cancerous tumor on my sigmoid. I am absolutely taking my medication and will continue to do so.

Nov 19, 2019 · Crohn’s disease and PSC - Questions about medication in Digestive Health

Are you experiencing any side effects from Entyvio? I’m curious about it and wonder if it can help me. I am not sure what my UC status is. I was considered moderate at my second to last colonoscopy and then they discovered a tumor on my sigmoid. I’m waiting for another colonoscopy so just taking mesalamine. I think they have now raised the bar on what they consider remission. They look at your mucousa lining to make that determination, which is good because that is where colon cancer starts
But I’m curious about the side effects of Entyvio

Nov 19, 2019 · Crohn’s disease and PSC - Questions about medication in Digestive Health

Thank you so much. I don’t think I’ve ever been classified as clinical remission but I was okay with my current state. I haven’t had a UC flare since 2012, and managed my disease pretty well. I always refused steroids because I had been on them for too long. But the cancer took me by surprise. So I guess when I’m able to have a scope, we will decide. I did do remicaid when I was with another doctor and hated it

Sep 24, 2019 · Metastasized colon cancer: At a loss..what is next? in Caregivers

I wish I had more advice but I don’t. I will say, you are entitled to your feelings and they are valid. Just because your partner has cancer, doesn’t mean your feelings and needs get out on hold. You’ve gone through a battle right along with him, all while experiencing loss. You don’t sound selfish at all. You sound like a human being who is hurting and scared. Have you thought Of counseling ? It may help you to have someone else validate your feelings. It sounds like you are doing self care, which is great! your husband can schedule an appt with his doctor to figure out what’s going on with the breathing!