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Posts (14)

Fri, Jun 28 8:38am · Neuropathy and other strange symptoms in Brain & Nervous System

Hello my fallow up apt is today at 10 what I know from my account it is Peripheral Neuropathy
Any suggestions what to ask at the apt can I suggest that I want spinal tap and mri of cervical mri
There is so many thing that could be wrong
Any ideas of the tests that that can due
Thank you and advance appreciate an advice

Wed, Jun 26 8:54pm · Neuropathy and other strange symptoms in Brain & Nervous System

Hi, I had a doctor visit on Tuesday he didn’t tell me much, except it is very hard to find what is the cause for my symptoms, but we can start with tests and work from there. When I know more about it I will let everyone know if they find anything, One thing that I saw on one of the tests results that I have carpal tunnel in both of my wrists and elbows going up to my shoulders. Sweat test for small fiber neuropathy came negative. I have a couple more tests that I don’t know the results yet when I do I will let everyone know the outcome.
Best of luck to all.

Mon, Jun 24 8:58pm · Living with Neuropathy - Welcome to the group in Neuropathy

Actually my apt is tomorrow. I’m excited about it and nerves at the same time.

Mon, Jun 24 8:58pm · Living with Neuropathy - Welcome to the group in Neuropathy

Hi I’m 53 years old woman with no hope for tomorrow please help if anyone knows anything please share.
Beginning of the symptoms started 10 years ago positional vertigo tinnitus tingling in my feet and hands and then it progressed to severe pain all over the body burning sensation extremely intense electric shock like severe sensation running through my body from top to bottom tingling numbness brain fog Trouble concentrating. Feet legs hands and arms extreme numbness that stays four hours. It spreads to upper back shoulders and side of my face nothing helps to relieve the symptoms. Red purple feet hands and nose at the time burning increases to unbearable. Chronic constipation happens all the time. Sleep problems pain wakes me up around 4 AM and then I can fall back asleep, cause me to feel tired throughout the day and then I take naps .
When I nap during the day I feel my pain increasing to such extreme levels but I cannot wake up from it. I feel tremors in my body as if I was cold but I am not called this only happens during the daytime naps not at night. Tinnitus is not as bad as before gabapentin and Cymbalta helps a little. A lingering tiredness and feeling drained like having the flu fatigue to the point that I can’t do anything my muscles are not week because I know I am strong but I don’t feel like I have enough energy to do anything and the pain makes me feel almost like I run a marathon . I feel like I have no control over my body, mind for future. The stress with pain physical changes and managing daily life, makes me sad worried and depressed. Overwhelmed with axiety and depression, struggle to cope. 😓

Thu, Jun 20 7:54pm · Nerve pain and difficulty swallowing: I could really use some help in Neuropathy

Hi, I have high hopes that I get some help in Mayo
I will share whatever they find.

Thu, Jun 20 9:05am · Nerve pain and difficulty swallowing: I could really use some help in Neuropathy

Hi I’m happy for her hopefully now she can get the right treatment.
Do you mind telling me her symptoms and what was the diagnosis.
I’m going to Mayo next week for my evaluation with big hope that they gonna be able to help me I’ve been suffering with neuropathy but almost 10 years and now it’s progressively worse than it was ever been I also have electric current like to add to my body fatigue and brain fog so appreciate the feedback and any advice as a first visit?

Wed, Jun 19 3:06am · Neuropathy and other strange symptoms in Brain & Nervous System

Good luck to you to.

Wed, Jun 19 3:03am · Neuropathy and other strange symptoms in Brain & Nervous System

Hi, gabapentin + ibuprofen at the same time helps a little while