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Tue, Jun 25 2:55pm · Can Gabapentin make neuropathy pain worse? in Neuropathy

Wow,
Until reading that link, all of my doctors made Gabapentin sound safe and effective. I was diagnosed with PN(likely Parsonage Turner Syndrome) 6 months ago a month before ACDF level 2 surgery. Started at 300mg, 900mg, ramped up to 1800 and 3 weeks ago increased to 2400 mg/day. My skin is red and rashy and I've had diarrehea almost everyday for the past 3 weeks and before I had very regular healthy bowel movements. I have severe pain in my very little relief. My neurologist suggested that I go to Mayo for further evaluation so I guess he has nothing more to offer in confirming my diagnosis? What can Mayo offer?

Tue, Jun 18 10:06am · Living with Neuropathy - Welcome to the group in Neuropathy

Good video! Would my nerve conduction studies reveal the information above? My neurologist is leaning toward a Parsonage Turner Syndrome but has now encouraged me to go to a Mayo Clinic for further diagnosis.

Mon, Jun 10 1:37pm · Small fiber peripheral neuropathy and alcohol in Neuropathy

My mistake. The wine was/is the only thing that helps my pain! I decided in order to rule out alcohol neuropathy, I need to probably quit drinking but I chose to refrain from wine M-F and drink only on weekends more moderately. I've had 3 NCS in 3 different states by 3 different neurologists 2 of whom are leaning toward Parsonage Turner the other Guillian Barre. I have not had a skin biopsy.

Sat, Jun 8 10:49am · Small fiber peripheral neuropathy and alcohol in Neuropathy

I too just joined the forum, recently diagnosed w poly neuropathy(6 months ago) possibly Parsonage Turner syndrome and I have been a wine drinker for many years. I have been honest with my medical team and chose to drastically limit my drinking(yes, it eases my pain) in an effort to improve my overall well-being especially this painful neuropathy. No improvement in my pain but I do feel better in general. I've had every blood and urine test imaginable all negative so I'm going to get a ekg and MRI of my brain later this month to rule out any causes from that end.

Thu, Jun 6 7:49pm · Parsonage turner syndrome * in Brain & Nervous System

Yes, I'm flying to Houston to see a neurologist who specializes in PTS to either confirm the diagnosis or rule it out.

Thu, Jun 6 7:49pm · Parsonage turner syndrome * in Brain & Nervous System

My symptoms are possibly PTS. I had ACDF level 2 surgery Feb. 28th and 3 nerve conduction studies by 3 different neurologists. My left thumb lost all flexion ability 1 month prior to surgery and remains unchanged. My right thumb is weak but still functional. Told to wait 2 years and it may go away. Does anyone have any experience with this disorder?

Thu, Jun 6 8:25am · Living with Neuropathy - Welcome to the group in Neuropathy

I'm Crystal and I may have parsonage turner syndrome( diagnosis this week) and a poly neuropathy diagnosis 6 months ago.