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Nov 19, 2019 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

shortness of breath, some pressure in my chest and I was not comfortable laying on my back. I could also hear the "sloshing". Dizziness when getting up and moving around. was not able to walk up stairs.

Nov 17, 2019 · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

I had the septal myectomy about 4 1/2 weeks ago. was in the hospital for 7 days. when I got home, I had lots of pain in the chest incision area and bone pain. I sat and slept in a lift char for about a week, then I was able to get into my own bed the next week. had to lay on my back only for the next couple of weeks. right at the 4th week I stopped taking Tylenol and noticed the scars, wounds and bone have significant healing, every day for the last couple weeks I have noticeably felt better every day. now I have little pain. If I move the wrong way or do something strenuous I get some pain. in 2 days it will be the 5 week mark since my surgery. And I am actually feeling really good. I start my cardiac rehab in 2 days. I will admit I seem to have some muscle pain in my back shoulder blade areas when I stretch. Also for the first few weeks after surgery, I was very short of breath. somewhere around 3 weeks that went away and my breathing got better and now I feel almost back to normal. I have also noticed the symptoms of the HCM are mostly gone now. so the operation was a success. It is hard to describe, but I feel really good and have motivation to do things. There were times in the first week after the surgery I was wondering if it would be worth it because I felt so bad. but now I would say, it was very much worth it. I am feeling so good at this point and expect to feel a bit better in the next couple of weeks. I am pleased with the outcome of the surgery. I traveled from Phoenix Az to Rochester MN. I gotta say the the Mayo clinic and St. Mary's are the best! I am so impressed with the care they provided. I have never experiences anything like it. Will admit, I was scared. But they took good care of me. When I met with Dr Schaff, he said there was about a 1% risk. That did make me feel better. I am planning to go back to work on 12/2. I could probably go back now and be fine. But have to do a couple of weeks of cardiac rehab first.

Nov 17, 2019 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

I had the septal myectomy about 4 1/2 weeks ago. was in the hospital for 7 days. when I got home, I had lots of pain in the chest incision area and bone pain. I sat and slept in a lift char for about a week, then I was able to get into my own bed the next week. had to lay on my back only for the next couple of weeks. right at the 4th week I stopped taking Tylenol and noticed the scars, wounds and bone have significant healing, every day for the last week I have noticeably felt better every day. now I have little pain. If I move the wrong way or do something strenuous I get some pain. in 2 days it will be the 5 week mark since my surgery. And I am actually feeling really good. I start my cardiac rehab in 2 days. I will admit I seem to have some muscle pain in my back shoulder blade areas when I stretch. Also for the first few weeks, I was very short of breath. somewhere around 3 weeks that went away and my breathing got better and now I feel almost back to normal. I have also noticed the symptoms of the HCM are mostly gone now. so the operation was a success. It is hard to describe, but I feel really good and have motivation to do things.

Sep 17, 2019 · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

My surgery is scheduled for 10/15/19 with Dr. Schaff. I will be traveling by myself, a family member will fly up to be there for the surgery and a couple days after. However I will be traveling home by myself. I have read several other threads and am trying to be positive. However I gotta say that I am bit scared. I am hoping i will feel better when its all done and i am recovered. I am obese and am hoping by feeling better, I will have more energy to get up and get some exercise. I will say my insurance has been great to work with. Much easier than expected. Still have some things to figure out. Once i get home, my father will be with me for a couple of months to help out. I bought a lift chair I plan on using for the first few weeks. I have stocked up on all sorts of items for easy meals etc. Any other advise or things i might need to think about for recovery?

Jun 13, 2019 · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

I am trying to figure out how to get my insurance to allow me to go to MN for this surgery.

Jun 6, 2019 · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

@sheim I would like to go to MN however my insurance will play a big part in where I get the surgery. They want me to get it local (as per a conversation I had with them). They did say that if no one local did the surgery then they might let me travel to MN to get it. So I have to check local first.

Jun 6, 2019 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Looking for a surgeon for myectomy in Phoenix Arizona. Any recommendations?

Jun 5, 2019 · can they test for "the HCM Gene" ? in Hypertrophic Cardiomyopathy (HCM)

can they test for "the HCM Gene"? I have been reading articles about HCM, and a couple of them say that their kids "don't have the gene". How is that determined?