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Tue, Sep 17 12:00pm · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

My surgery is scheduled for 10/15/19 with Dr. Schaff. I will be traveling by myself, a family member will fly up to be there for the surgery and a couple days after. However I will be traveling home by myself. I have read several other threads and am trying to be positive. However I gotta say that I am bit scared. I am hoping i will feel better when its all done and i am recovered. I am obese and am hoping by feeling better, I will have more energy to get up and get some exercise. I will say my insurance has been great to work with. Much easier than expected. Still have some things to figure out. Once i get home, my father will be with me for a couple of months to help out. I bought a lift chair I plan on using for the first few weeks. I have stocked up on all sorts of items for easy meals etc. Any other advise or things i might need to think about for recovery?

Thu, Jun 13 1:28pm · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

I am trying to figure out how to get my insurance to allow me to go to MN for this surgery.

Thu, Jun 6 11:38am · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

@sheim I would like to go to MN however my insurance will play a big part in where I get the surgery. They want me to get it local (as per a conversation I had with them). They did say that if no one local did the surgery then they might let me travel to MN to get it. So I have to check local first.

Thu, Jun 6 10:36am · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Looking for a surgeon for myectomy in Phoenix Arizona. Any recommendations?

Wed, Jun 5 3:07pm · can they test for "the HCM Gene" ? in Hypertrophic Cardiomyopathy (HCM)

can they test for "the HCM Gene"? I have been reading articles about HCM, and a couple of them say that their kids "don't have the gene". How is that determined?

Wed, Jun 5 3:03pm · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

Had the cath lab Monday night. its official, I need a myectomy. Now I need to find a surgeon here in AZ. My cardiologist is checking. Any recommendations? I am hoping the Mayo has a specialist here in AZ.

Wed, May 29 3:36pm · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

I was officially diagnosed with HCM about 3 years ago, however i have been feeling the symptoms since childhood. I always felt something was wrong, and been to the cardiologist many times and they didn’t find anything until about 8 years ago, a very pronounced murmur appeared and they were looking into what was causing it. They didn’t diagnose me then, however they wanted to keep an eye on the murmur, so every year i get an Echo. 3 years ago they found the HCM, and this year it is now considered obstructed, which i believe is HOCM? My cardiologist said i will need a myectomy. This next monday i am headed to the cath lab for them to take a closer look. Not sure what happens next. I’m freaking out. Been reading other posts, trying to learn more about the surgery and what to expect. Sounds like this is an open heart procedure? I think that scares me most. I am 51 years old. Over the last couple of years i have really slowed down, and get fatigued quickly, chest pain, strange heart beats and sensations. And over the last few years i have been dealing with severe anxieties because of this. I am on a few meds for the HCM as well as other meds for diabetes. Is this an open heart procedure? Thankfully i live in the phoenix area, so there is a mayo clinic here. A few years ago, i never heard of HCM. Up until a week ago, i didn’t know they could surgically treat it. there seems to be lots of peoples stories here with some great information. Some of it is scary and most seems to be positive. Not sure why I am posting, but when i describe this to my family, they don’t seem to understand this is kinda serious. I guess i just needed to relate to someone who understand this.