Hi Jake, just read your text. This really worries me… Hope you are feeling better & I hope you went to see the doctor. May not be epilepsy related. Thinking about you will lift you up..
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Tue, Apr 21 9:29pm · Anyone had a brain stimulator placed for epilepsy? in Epilepsy & Seizures
Hello, yes tough decisions… My son (16) had a VNS placed about a year ago. So far it has not reduced the number of seizures but has helped with the severity of them. But it did change his voice, which really bummed him out because he loves choir & loves to sing. It does irritate him when it goes off, But he is complaining less of this with time. Fairly simple surgery. Unfortunately, has not yet helped him to reduce his seizure medication yet…..
Fri, Mar 27 10:55am · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures
I am so sorry that you or any of us have to go through this… It is so scary , disheartening, depressing, sad….. Makes me want to cry 😢😢. I have a 17 year old with similar issues so I have the same questions. I just keep praying & not lose hope because I know there are things out there that can & will improve his quality of life. It is just so hard to keep searching & not findind things that really work. But please don't give up & I defently would get 2nd, 3rd, 4th ….. Opinions. Lifting you & your family up now.
He has been on several medications since then the latest three are onfi, keppra, oxycarbazepine. Dr. says Intractable seizures mainly from the right side. However, I am not buying that diagnosis yet…he's only 15.
Good Morning, first of all sorry your family has to go through this,… just wanted to let you know you are not alone my son when he was 7 or 8 started seeing strange things & having strange behaviors (seeing bugs in drinking cups, opening all the cabinet doors ect…) After he was placed on seizure meds this seemed to get better. But it has been a long worrisome journey & it is not over…. So keep your heads lifted up & wishing you and your family the best!!!!