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Wed, Aug 14 12:01pm · Metastatic breast cancer, in bones: Trouble eating in Breast Cancer

Haven't been on here much. Wanted to say I have a nucular scan on 27th of Aug. Cancer #'s up. Doctor thinks it is in back, pelvis. Another waiting game, worrying about what will be found. Have changed total diet, no dairy, meat, except org. chicken, gluton free, no sugar, only non GMO. Am starting marijuana again, hope gut will keep working. Husband still with me but not doing much anymore, he is tired all the time, sleeps a lot. Always seems like waiting for an answer. I am staring to have bad panic attacks. Doctor want to put me on heavy med. Holding off for now, see what test shows. Will make decision after test results about taking new meds. Will post how tests come out. Thanks for listening.

Sat, Jun 15 1:15pm · Zometa infusions in Breast Cancer

Have my first infusion on Monday. Since I have reactions to most meds, I have bad fibromyalgia, am a little worried about how sick I will be. Have something important to do on Tuesday and can't be sick. Should I postpone it?

Tue, Jun 11 8:37pm · Metastatic breast cancer, in bones: Trouble eating in Breast Cancer

Thank you lynnydave12 Sounds like you have your hands full also. I am staying off marijuana for now as I try to get IBS more controled Am starting a natural diet, no sugar, dairy, limited meat, non GMO where I can. Hope it works. I wish you well. God bless.

Tue, Jun 11 8:12pm · Metastatic breast cancer, in bones: Trouble eating in Breast Cancer

Hi, Colleen Haven't been on because of my many problems. I am doing ok, but my kidney function has been effected by shut down. #'s have come up some but still showing stress of shut down. So lots of water and lot of prayers. Had a scare today with husband. He choked eating supper and could not catch a breath. He finally coughed up the piece of meat, but it was hard to watch when I know more of the same is coming. Doctors, cancer and regular have warned me that I am heading for a break down if I don't get a handle on my life. I am going to call palliative care to see what help I can get right now. My cancer #'s were the same as last month, at 44. I am starting on my natural diet to see if I can get my IBS under control. Thank you

Fri, Jun 7 11:31am · Metastatic breast cancer, in bones: Trouble eating in Breast Cancer

So, last night I was in ER for a complete shut down of my renal system because I am not drinking enough liquid. I pray I have not done damage to my kidneys. I have had my kidneys shut down multiable times with my first cancer and with surgery's. over the years. So now I start over with this journey I am on.

Wed, Jun 5 8:01am · Metastatic breast cancer, in bones: Trouble eating in Breast Cancer

Thanks Colleen, Yes both of us signed up for palliative on yesterday, June 4th. I am hoping that it will help with all going on with us. Stress is my worse problem now, I know it is my eating problem from problems over years with GERD and IBS. I am hopeful that they can help some. Still trying more natural foods, helping some but still not enough food being eaten but still no hunger. Have monthly labs on Friday. Worried numbers will be high I feel stressful already. Some days I am my worse problem with how I am not handling all this. Pray daily for help. My appointment is at local cancer center next Monday., and worried doctor will not be happy with decisions I am making, but it is my life. Will let you know.
Thanks for giving me a place to vent. My best friend passed away of pancreatic cancer a couple of years ago and I miss our daily contact and leaning on each other to get through bad times. She got me through my first cancer and could make me laugh no matter how I felt. Could use that now but mostly tears around here now. Today is my 76th birthday and I feel every year. Not much joy anymore. No Golden years in this house. Thanks

Tue, Jun 4 6:29am · Metastatic breast cancer, in bones: Trouble eating in Breast Cancer

I found out yesterday that I now have osteopenia in my back and hips. This is a side effect of hormone pill I am on, Femara. I also had this happen my first time around with cancer. They were able to heal over several years with diet and meds. It is worse this time because of my age. I have lost 1 3/4 inches of height over last 2 years. Lots of back pain and loss of balance. I have gone on natural diet so I can get the nutrition that I need, but I can eat so little that don't know if I can do any good. Have decided to tell doctor that I want no more meds. until my stomach is healed enough so I can eat right again. I am tired of feeling like I have the flu all the time. I hope he will work with me on this. Anyone else with this problem? Went with husband to his lung doctor and his lungs are now down to only 38% function. so dealing with this also. My stress is very high right now and is not helping me heal in any way. Just lost right now, but fighting as hard as I can. Thanks for listening

Sat, Jun 1 9:34am · Metastatic breast cancer, in bones: Trouble eating in Breast Cancer

Thank you, Colleen My oncologist know about marijuana use. Said patient should be able to seek any care they want. I see him in 2 weeks. I am off marijuana but so far not eating any better. Trying to make smoothies with protein in them but even they are hard to get down. Not sure where this is going. Dr. has said to call for local pallitive care. Will do on Monday. Hate this. Want quality time for days I have left. I know my fibromyalgia plays a big part in not letting meds work as should. Just really lost right now and feel like drowning in stress. With my husband counting on me also, it is very hard.