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Wed, Feb 19 3:29pm · Eliminating Foods for Neuropathy pain in Neuropathy

PS – my A1c and glucose tolerance test and blood tests were all fine, close to prediabetes, but no Dr ever mentioned it, or to make dietary changes, or asked about my eating habits.

Wed, Feb 19 3:29pm · Eliminating Foods for Neuropathy pain in Neuropathy

I want to share a very interesting book that may ring true for some of you. SUGAR CRUSH by Dr Jacoby. I was the one that brought homemade cookies, brownies, cakes and banana bread to work then went home and ate the leftovers for dinner! I could, and still can, down a large bag of chocolate candy in 24-48 hours. I was researching neuropathy, again, came across this title and fortunately my library had it available as an ebook. I seriously was eating Dove chocolate as I started this book – straightforward information, he doesn’t get too technical with medical terms and explanations. I know I need to eliminate or seriously cut back on my sugar (&alcohol) intake. I believe he has a point!

Sun, Feb 2 1:44pm · Living with Neuropathy - Welcome to the group in Neuropathy

Hi Ruth, another Floridian here. Just one thought for you-did your bloodwork she a deficiency in B12 and calcium? The first neurologist I had gave me an RX for a 'super B' type vitamin. He never did bloodwork. I took it for about 5 days and my pain got worse because I didn’t need the B6, my primary dr. then did bloodwork so I know now I did need B12.

Sun, Jan 26 12:11pm · Palmitoylethanolamide (PEA) SUCCESS? in Neuropathy

Palmitoylethanolamide (PEA) user for at least 6 months. Seemed to work after several weeks, then not, then somewhat, now not at all and the burning pain is spreading to most of my body. Anybody find success? Is this how it works for you as well? Just hate to throw away money and continue unnecessary/ ineffective supplements. I use the Ergomax brand. Thank you fellow sufferers! Appreciate this forum and people willing to share, advise and encourage!

Fri, Jan 24 4:20pm · Living with Neuropathy - Welcome to the group in Neuropathy

Jeff, please post how the LDN works for you. That’s my next go-to I think. My PN has gone from just feet and occasionally hands to my entire body minus front of torso and head. As you said, it’s here then moves there, mild then painful, fair days and awful days…no rhyme or reason!

Tue, Jan 7 1:50pm · Dry eyes in Eye Conditions

I was given xiidra samples, blurred my vision for an hour and a half so I didn’t stick with them. There is a good assistance program where you may be eligible to get them for free. I believe the incomes amount was $60,000 or less. That’s all they asked, not other financial information.

Dec 29, 2019 · VITAMIN B12 and Neuropathy in Neuropathy

Looking forward to your Naltrexone 'summary' Lori. What is the dosage right now? Easy to get or compounding challenged?

Dec 21, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Dawn67 – just curious, and alcohol's impact on neuropathy has been discussed here before. Question is, how much is too much?
Of course someone who drinks 1/5 a day would know that’s too much and definite cause and effect. Some of us enjoy the mental break from our pain and want to drink in the evenings. But then is it just adding to the viscous cycle? Please share what you can about frequency, amount, years of use and it’s impact on neuropathy. Mine has no determined cause but I am determined to figure this out. Most of my life drank little, some years only typical young adult weekend fun, later years with stressful job a little more Frequently and quantity….
Thank you for any insight