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Posts (4)

May 15, 2019 · Eagle Syndrome in Ear, Nose & Throat (ENT)

I was referred to an ENT Dr. In my area by the neurosurgeon the VA sent me to using the community care provided by the VA. I saw the ENT for about two minutes. I was in the middle of telling him all my symptoms and he cuts me off saying, “None of the symptoms you are describing has anything to do with Eagle syndrome,” and before I can say anything he tells me he is going to call the neurosurgeon that referred me to him and he would call me the next day and abruptly walks out of the room before I can respond. The entire appointment he had a dismissive and irritated attitude. I waited months, and navigated the difficult VA system to get this appointment. He does not call me the next day, so I called his office and left message with receptionist. Finally two days later his receptionist calls me and tells me the doctor has referred me back to the neurosurgeon that referred me to him in the first place, and gives no reason why. Now I feel hope slipping away. Bilateral Elongated styloids are confirmed and according to every source available to me, all my symptoms do indicate Eagle Syndrome, but the ENT dismissed the possibility of ES. I am scheduled to see the same neurologist I saw before the ENT on Monday. Having only the VA for healthcare, and these two doctors sending me back and forth and dismissing my symptoms as being caused by ES has me worried that I will never find help and get stuck in the sub-standard VA system and forced to endure this pain and suffering for the rest of my life. My symptoms are severe and have taken over my life to the point that I am having trouble taking care of myself. Please, if someone knows how I can utilize VA healthcare through the community care (choice program) to see a doctor out of my state, that has experience with ES, and is willing to help me, the info just may salvage my life.

May 13, 2019 · Eagle Syndrome in Ear, Nose & Throat (ENT)

Thank you for you reply and information. I am currently trying to deal with the VA so I can see a Dr who has experience with ES.

May 13, 2019 · Eagle Syndrome in Ear, Nose & Throat (ENT)

Thank you for the information. I am currently trying to talk to the VA and the community choice offered by the VA to allow me to go see him but it is an uphill battle. Hopefully I can be allowed to. I am very grateful for you recommendation.

May 11, 2019 · Eagle Syndrome in Ear, Nose & Throat (ENT)

The VA is my only source for healthcare. After years of complaint about symptoms and many test someone finally noticed I had bilateral elongated styloid. I was sent to a civilian neurologist and they had no idea, so they referred me to ENT. I told the doctor all my symptoms which are exactly the same as most of you have stated. Neck pain, headaches, weird sensation in my throat, electric shock type pain when turning head, jaw pain and a feeling of pressure in my head as if I was hanging upside down too long, popping and clicking and catching in my neck. The ENT told me none of the symptoms I mentioned were a result of ES. He further stated that ES only causes pain directly under the ear near the gland in the neck under the ear. He treated me as if I were imagining or fabricating these symptoms and dismissed everything I had said. I am at my threshold with these symptoms. I have no quality of life. The more I am up walking and moving around the worse the symptoms get. Having only VA as healthcare it took months to be able to see a doctor and I don’t even know if I can get, or how to go about getting another opinion from another doctor through the VA choice program. I cannot continue to live like this. Does anyone know of any doctors in Texas that will take me seriously and help me, and work with me through the VA? Any information will be greatly appreciated.