About

First Name
Rachel

State/Province
NY

Health Interests
Chronic pain, Eye disorders, Neurology (brain and nervous system)

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Posts (413)

2 hours ago · Anyone with experience using Low Dose Naltrexone? in Autoimmune Diseases

Mimi…my last post was meant to be replied to you directly, not Justin. Just making sure you see it!
Rachel

3 hours ago · Anyone with experience using Low Dose Naltrexone? in Autoimmune Diseases

OMG I am so pleased to meet you and read your post as I literally have just sat down to rest after taking a hydrocodone and returning from my first MM dispensary visit. A bit overwhelmed but, incredibly prepared thanks to this forum and my years worth of research. You totally are speaking my language regarding pain, pain management and drugs. Thanks ever so much for sharing your story, trials and tribulations, and providing something more I can relate too. I've had several RFA, have LDN sitting in my cabinet as plan B to medical marijuana. Hoping so bad to be able to ditch my Lyrica, Hydro, infusions and maybe Duloxetine but, only time will tell. You give me such hope and honestly timing couldn't have been better. Mayo Connect has provided me more than any Dr ever has or will and for that, I am forever grateful. Mimi…you are awesome. Thanks for speaking your truth. Rock on sister!!!!💪🏼

4 hours ago · Anyone with experience using Low Dose Naltrexone? in Autoimmune Diseases

Hello. Yes, I have. Actually it was delivered to me yesterday and I plan on starting it as soon as I begin a cbd/thc regime for pain and reduce my hydrocodone. My pain management Dr prescribed it to me over a year ago for undiagnosed chronic pain. I never began taking it because I needed instant relief and wasn't willing to drop hydro at time which is contradictory to LDN. I've continued to research it and now have a diagnosis of Small Fiber Poly Neuropathy. It's a crap shoot but what isn't at this point. I'm starting with 1.5 then doubling in a month to 3 then to 4.5 the following month. If in 3 months I dont feel its having a positive influence on my pain, I will chalk it up.
Rachel

2 days ago · Unknown Cause or Idiopathic SFN in Neuropathy

Hi @azza1
Thank you for your response. Im so glad to hear botox injections bring some relief to you. I receive botox in the same areas and I count down the days in my final month until next visit. Never thought I'd be so happy to get 40 little bee stings all over my head neck and shoulders. We gotta do, what we gotta do! Yes, no cure is right…sad but true for now. Be well in managing your pain today. Its really hard to live with such uncertainty but talks like this help to know we are not alone.
All the best,
Rachel

1 day ago · Unknown Cause or Idiopathic SFN in Neuropathy

Botox is typically covered by insurance every 3 months however, for me, it begins wearing off after 2 months. Getting through that final 3rd month is challenging. I also take monthly Emgality self injections which has helped cut my migraines down to 3-5 per month. Im glad your getting relief with your current treatment.

2 days ago · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

Hello and welcome. May I ask how and when will you be finding out your diagnosis? Before I jump in with two feet for you I would like to understand a bit more…if you are willing to share. You ask great questions and came to the right place for support, knowledge and encouragement.
Rachel

2 days ago · Unknown Cause or Idiopathic SFN in Neuropathy

You crack me up. Hahaha…I would have thought the same thing if my husband said that to me but, would have thought it was a Bruce Lee quote as my hubby is a big fan. Well, those words were spot on regardless. Such truth. Keep up the good work and I will continue to send positive thoughts your way for Dec 4th and beyond.
Rachel