About

First Name
Rachel

State/Province
NY

Health Interests
Chronic pain, Eye disorders, Neurology (brain and nervous system)

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Posts (573)

14 hours ago · Living with Neuropathy - Welcome to the group in Neuropathy

Hi Jim

My PCP wants me to try Nortriptyline for added pain relief. I am already weaning off Duloxetine so once that's done, I will start Nortriptyline. We are scraping the bottom of the barrel. I'm going to run this idea past my neurologist as well during my 2/6 visit. Have you Jim, or anyone else, used Nortriptyline and found success? Seems like I'm quite past this drug but, I'm no Dr.

In other news…my blood testing reveals continued high copper levels, which have been high for a year now. Neuro is sending me to a gastroenterologist to rule out any liver problems. Also, I'm below threshold on Aldolase and Alkaline phos. MCV is a little over threshold.

At this point low B12 is supposedly the blame of my SFPN, which has been pretty devastating to my life, therefore, I underestimate nothing.

18 hours ago · Living with Neuropathy - Welcome to the group in Neuropathy

Hello Nina and welcome. You most definitely will benefit from this group. I have Small Fiber PN and joined the group last May. Since, I've received support, encouragement and have continuously been educated about my disease from others experiences. Take care.
Rachel

1 day ago · Anyone here dealing with peripheral neuropathy? in Neuropathy

It is very nice to hear your input . You are obviously very dedicated to your wife to read through all those posts! Thank you for sharing your thoughts and her experiences with us. Welcome to you and many well wishes to Linda.
Rachel

1 day ago · Living with Neuropathy - Welcome to the group in Neuropathy

Took the words right outta my mouth. Could not have said it any better. It brings me comfort only to know that I live among many many others affected in this way because my family sure doesn't understand. They hang their hat on money and going out of the area, to big universities etc… the old money talks theory. I know they care and just want the best for me but it gets exhausting to hear over and over again. Im going to screen shot your post Jeff and share with them. Thanks for having my back! -👍🏼

2 days ago · Addiction vs. Dependence in Addiction & Recovery

My first thought is that I'm really mad and frustrated to be on opiods, still to this day, especially because I'm the don't drink, don't smoke, don't do drugs person. Therefore, it has and continues to be a thorn in my side. Also, I am a child of a chronic pain mother since age 8. Watched it, never wanted to live it.

I've been on an opioid for 3 years and without a doubt I am physically dependant…the nature of the beast. Along my path, I've gone off cold turkey just to prove to myself that my brain wasn't addicted and I had the power, not the drug. My guide line is always that if my pain doesn't warrant use I'm able to not even think about the drug. This is huge to me. Unfortunately, my pain has escalated, neuropathy is progressive and pain need has increased

That leaves me with the angle of…ok, now what do I do? Don't want to be on long term as in the rest of my life. So, I keep looking for safer, healthier, alternative pain management. How can I be proactive for my overall well being. Can I alter my daily relief for the betterment of forever relief. There are no easy answers.

Each person has to soul search and make their own decisions, along with their Dr, on what is the best path for them. I don't walk in anyone else's shoes therefore will not judge others.

Hope my thoughts help in this touchy conversation. Have a nice day y'all.
Rachel

5 days ago · Fibromyalgia in Chronic Pain

Yes, I have. Thank you for the suggestion. Last spring I had a bout with terrible, itchy sores and skin irritation which was at the same time the discoloration and freezing began happening. Saw my PCP, dermatologist, vascular and neurologist to finally rule out Raynauds, diagnose Chilblains and neuropathy.

5 days ago · Fibromyalgia in Chronic Pain

No problem. Best of luck to you.