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Tue, May 7 4:35am · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Well I am pleased to say that I heard from Lisa and she said there are about 20 in the group from Australia!!! Hopefully I will be able to learn a lot more about this disease. I have been feeling rather off for a couple of days with a lot of pain in the back and the sides. Had a concerned friend ask what was wrong with me today. I haven't told anyone. She is very astute. I experienced what I would call flu-like symptoms yesterday, and major headache today, though not what I would call a migraine. Waiting for my first app't with the GI doctor has felt like an eternity, and I still have a week to wait. I will be writing out my concerns and questions for him. I applied for a job just before this diagnosis and actually have an interview this Friday. Great news but praying I am going to have a good day so I appear bright and enthusiastic. It is casual but I've wanted a job for the longest time.
Blessings to everyone on this page <3

Thu, May 2 5:08pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hello everyone. Is the facebook group still active? I have messaged Lisa via her link to her FB profile and am awaiting a reply. I understand that she is probably a busy lady, and not on Facebook all the time.
Do any of you have back pain, and how do you manage it? I'm just taking panadol osteo, and sometimes panadeine forte. As I'm only newly diagnosed and still have to wait 2 weeks to see a specialist, I'm not sure how best to manage. Thank you😊

Fri, Apr 26 8:53pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Forgot to mention that I've had IBS type symptoms for years which took a turn for the worse in 2015, embarrassingly resulting in chronic diarrhoea and an incontinent bowel sometimes through the night, and a couple of times at work. Thankfully that side of things has settled somewhat, though still problemsome.

Fri, Apr 26 6:41pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hello everyone. After years of random symptoms on and off, a doctor finally decided to to Physical examination of my abdomen, sent me for a CT scan which revealed MP. Apparently I presented as someone with diastasis recti in the upper abdomen.
I am waiting on a chat with a gastroenterologist in 3 weeks and don't know what the future holds.
I also have an uncommon adipose disorder called lipoedema which causes inflammation and pain.
Ì would be happy to interact with this group as I feel very alone with this. I live in rural Queensland Australia where there is the Aussie pervading She'll be right mate" attitude.
I have symptoms which are getting worse right now which my doctor believes aren't related to MP.
My upper abdomen in very distended and painful when pressed. I get niggly pain down the right side at random times, but a lot of pain across the middle back.
Sometimes I feel queasy, though not nauseous and have recently experienced a bit of heartburn in the evenings.
I'm also fatigued ALL the time and sometimes find it hard to catch my breath. Today I'm at our local markets, sorting to write this post, as my head is fuzzy, affecting my walking.
I have had a lot of bariatric procedures over the past 20 years, and sometimes I feel some pressure on the back of my larynx when lying or bending over.
I am keen to join the facebook group of its still operational a there's not much support out here.
Thanks for reading.
Blessings.
Sheryle🦋🌻