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Thu, Jan 23 7:02pm · Post-cholecystectomy or gallbladder removal surgery in Digestive Health

Hi all. This will be my final update. It's been almost 6 mos since my biliary stent removal and almost 9 mos post-cholesectomy. I can eat almost anything in moderation now and am pain free and stomach spasm free as a result. I am however still on Dicetel as it helped improve my Crohn's symptoms. I am down to 2 per day and hope to eliminate them completely. So in my case, I was followed well by my medical team and the 3 extra ERCPs I endured seems to have cured my post-cholesectomy pain. I hope that my experience can help others help themselves to get similar results. Of course every case is different and it is still up to your medical professional to determine the best course of action for you. Good luck everyone. It is terrible physically and mentally to live with biliary pain and you shouldn't have to in 2020. I have a new lease in life today now that the pain is gone.

Jul 31, 2019 · Post-cholecystectomy or gallbladder removal surgery in Digestive Health

Hi All. Well it's been exactly 2 months since the stent was placed in my bile duct to widen the duct and diameter of the Sphincter of Oddi for my PCS and SOD. I am happy to say that my stent was removed quicky this week and without the trauma of the previous 2 ERCPs. My RUQ PCS pain is no longer there and my stomach spasms are subsiding. I will be going off Dicetel next week.

When my Gastro removed the stent he was very pleased with the success of the duct widening and also stretched the Sphincter of Oddi once more with ballooning before he finished the procedure. I am now symptom free and very happy. It was a long road but it turns out that patience was key as well as physicians who never gave up on me. I will make a final post after my follow up appt in 1 month. I hope some of this information about my journey helps someone else with Post Cholesectomy Syndrome caused by Sphincter of Oddi Dysfunction post Cholesectomy.

Jul 15, 2019 · Post-cholecystectomy or gallbladder removal surgery in Digestive Health

The stent is a plastic temporary stent meant to widen the bile duct and sphincter. It gets removed after 2 months once the widening is completed. I believe you are referring to a permanent metal one for worse duct issues than mine. Yes I have heard horror stories about them.

Jul 15, 2019 · Post-cholecystectomy or gallbladder removal surgery in Digestive Health

Hi there. Perhaps your case is differentntjan mine. I have had no pancreatitis attacks at all. Neither acute or chronic. Just stomach lining inflammation and spasm when my stomach is too empty. Nevertheless, the stent comes out of me in 2 more weeks. I am sorry to hear you had such complications with your ERCP. My 80 year old mother has had 2 ERCPs to remove bile duct stones and a Sphincterotomy and is doing quite well.
Without pancreatitis. Better than me actually. Trust me, if I could turn back time I would have opted out of the ERCP and waited longer. I will look at a 2nd opinion when the stent is removed if the stomach inflammation and spasm continue.

Jul 14, 2019 · Post-cholecystectomy or gallbladder removal surgery in Digestive Health

Update:. After my Sphincterotomy on May 24th i had 2 days of no pain and then the pain came back. My gastro had me go for a 2nd ERCP on the 31st to put in a biliary stent as he felt my duct had narrowed. Long story short, since the stent my stomach lining has chronic inflammation and is spasmatic. Dr. thinks the irritation in my duodenum from the stent is causing a Crohn's reaction and these spasms. I was prescribed Bentyl and that was ineffective but then Dicetel which has been very effective. My pain in RUQ is now positional likely due to the stent. Anyhow, my stent gets removed on July 31st. Current status is that I am starting to feel better but the ERCPs have been very traumatic to my stomach. I dread the stent removal but hopefully it doesn't set me back too much. Btw,. Smaller meals and lower fat is also a way of life for me and that hasn't been a bad thing. I have lost around 20 lbs from this whole ordeal and bowels are also improving. Will update in Sept after 2 mos post stent removal or earlier if i feel better sooner. Part of me questions or I should have ever gotten an ERCP in the first place but another part tells me with Crohn's on top of this, I just need to be patient.

Jul 13, 2019 · Gallbladder(?) Concerns in Digestive Health

Definately see a gastro and perhaps ask for an MRCP.

May 26, 2019 · Post-cholecystectomy or gallbladder removal surgery in Digestive Health

Update. I had my ERCP Sphincterotomy on Friday. The surgeon cut the muscle of the Sphincter of Oddi and cleaned out my duct. I did however have extreme abdominal pain about 8 hours later and had to go to the ER to ensure it wasn't Pancreatitis. I started feeling better shortly after arriving at the ER. Blood tests were good and was sent home. They suspected I passed a stone after the Sphincter was opened or experienced a spasm. Since then the PCS seems to be improving a lot. In the spirit of not getting too confident I will update in another month. Thanks for your input everyone but so far so good.

May 23, 2019 · Post-cholecystectomy or gallbladder removal surgery in Digestive Health

Wow. Sorry to hear you had to endure this for so long. I'd have to agree with you not having anything else done if your are prone to adhesions post op. Thanks for the kind words and wishes and I hope this spells the end of my issues.