A bit off topic, but nonetheless important with regard to the decision as to whom to trust with your health care. According to stat this morning "… In the last two years, (Mayo Clinic) has struck 16 deals in which it has shared de-identified patient data to co-develop products with outside firms.
These deals have generated less than $5 million for Mayo, a tiny fraction of the $13 billion in revenue it generates every year. But they are part of a much broader data trade that is growing more common— and which has ethics experts worried that the patient consent process is falling behind the pace of innovation.
Mayo’s patients were not told of the specific arrangements or asked to approve the use of their data, which is standard practice when it comes to the use of de-identified information. But should de-identification by itself give health systems carte blanche to trade on patients’ data?