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Posts (9)

Sat, Feb 8 10:21pm · Post Interferon Syndrome in Infectious Diseases

I completed my treatment over 20 years ago. I also feel, like I’m dying and losing my mind. All these years and it’s still a daily struggle. And who do I talk to? The doctors don’t want to hear to hear about it. They will help with symptoms but that’s it. It sucks. If I had to do one thing over in my life I would die from hep c. I wouldn’t wish this on anyone. I don’t talk about it with anyone. Unless it’s happening to you I sound like a whiner. “ At least you’re cured!” F*%k you. Do you want to trade places?

Oct 16, 2019 · Post Interferon Syndrome in Infectious Diseases

Agreed. Nice to see some activity. For those of us with severe reactions time doesn’t heal all wounds, if anything it gets worse. So I just don’t talk about it. When I get a really bad couple of days in a row I try to avoid people as much as possible. Sometimes my wife picks up on it and asks what’s going on. I can’t explain it, my brain just goes bad, or worse than usual, everything is black.She tries to help, “look hw much you have to grateful. She’s right, but it doesn’t work that way. My son is handicapped, he doesn’t talk, ask questions or judge. We spend a lot of time walking around and I can relax. That helps a little.

Sep 9, 2019 · Post Interferon Syndrome in Infectious Diseases

Marko’s Post was in March. You pick the one post from the entire year that you have a reply to? Your post sounds like a newsletter article an outside vender wrote. Read the more current post and reply from your heart, not a script, even if you got nothing at least it would honest.

Aug 25, 2019 · Post Interferon Syndrome in Infectious Diseases

Thank you. The doctors say the main thing is to start getting better now. The cause of your depression is secondary to your getting better. It’s not secondary to me. Also, “ Oh, I don’t know,what you’re talking about, but that was so long ago. Can’t you just get over it.” No I can’t just get over it. Time doesn’t help. I always feel like I stopped treatment yesterday even though it’s been 20 years. I can eat, I don’t have flulike symptoms anymore and with medication I can sleep, but the bad thoughts are constant. The few people I mention it to say “Everyone has days like that”. No they don’t. Thoughts of suicide plays like a loop. Over and over. Sometimes for days. I look at at some stuff on line and the questions are like “ How many times have you thought of suicide in the past week, once, twice? Or more. How about 1,000? It’s ongoing, it never stops. The medication allows me to function, but that’s about it.
Hear “Just be glad your cured”. No. I’m not. Interferon is the gift that keeps giving. Anyway, I don’t talk about it anymore, to anyone.

Jun 7, 2019 · Post Interferon Syndrome in Infectious Diseases

Where did you go. No one else even thinks this is thing. I like to know I’m not the only one. I’m on three antidepressants and everything still sucks. The rest of the world has happy endings to their depression stories. “I was so depressed, for so long, and then I got better”. And this to shall pass. But what if it doesn’t. Interferon permanently changed me for the bad. It never gets better.

Apr 22, 2019 · Post Interferon Syndrome in Infectious Diseases

There aren’t many people posting here. Maybe they think only a few people suffer like this? Maybe they’re right? Maybe only a few of us do suffer like this. Maybe no one monitors the site?

Apr 20, 2019 · Post Interferon Syndrome in Infectious Diseases

If anyone reads it and replies, that helps me too.

Apr 20, 2019 · Post Interferon Syndrome in Infectious Diseases

My god. I’m going insane with sadness and I thought I it was because I am weak and spoiled. So many Doctors and not one has said 26 months of interferon, then 6 more months with interferon/Ribavirin, could do this to me. They shake their heads, maybe make a note, wait till I stop talking and move on. I’m on 3 antidepressants which help, sort of. I don’t talk about it to anyone because I sound like a whiner and no body believes me anyway. The only time I felt ok was when I taking oxicoton for cancer surgery. I’m having minor surgery next week and I’m going to ask the anesthesia guy to put me out slowly so I can feel normal for 15 seconds. marko1 and sueleerock, just say hello and let me know you read this.