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Thu, Sep 26 8:19pm · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

I had an Extended Septal Myectomy and excision of Papillary muscle. Was SUPPOSE to start Rehab within 2 weeks but could not get in until 7 weeks. Now I'm finding the Rehab Center can't get a clear answer on if Medicare will cover it. Has anyone had this and have any issues with Medicare? I did leave a message to see my heart dr can get anything going but I don't think I'll hold my breath.

Tue, Sep 24 4:13pm · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

You were smart to get a lift chair. While my recovery was remarkable, getting in and out of bed was in major pain. My husband would have to left me to a sitting position. The HARDEST part of the whole recovery (for ME) was remembering NOT to use my arms or hands to get up. We have no idea how much we use our arms until we're told NOT to. While I'm 70 years old, I spent the last couple of years walking and working out which I"m sure was why recovered so well.

Tue, Sep 24 4:09pm · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

With Dr Schaff as your surgeon, you can KNOW you are in good hands. He did my surgery June 27th and I've been BETTER than back to normal for over a month now. I went back to the gym the first of Sept and other than a little back pain I'd never know I had surgery or even needed it. Good luck to you both

Sun, Sep 1 9:54am · Head rush sensations in Hypertrophic Cardiomyopathy (HCM)

I had a lot of that before finding out I had HCM. Dr's thought it was vertigo….I thought it was low blood pressure. Tests showed I did NOT have vertigo. Once diagnosed with HOCM I did a TON of reading….as you probably will. Disopyramide did help some but over all did not ….resulting in the Myectomy.

Sun, Sep 1 9:45am · My husband is having a septal Myectomy in Hypertrophic Cardiomyopathy (HCM)

Recovery should be 4-6 weeks. I am 9 weeks post surgery and other than some little back pain am great. I skipped rehab since I could not find out if Medicare would pay and Saint Al's rehab in Idaho could not tell me what it would cost. I just did it on my own at our local rec center gym. They got the ok from Dr's on what I could and could not do. BEST thing is walk as much as possible from day 2. Good luck to your husband…and you. Hardest part for both of you will be getting in and out of bed or the chair NOT using his hands.

Mon, Aug 5 9:09pm · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Dr Schaff did my surgery the end of June and everything went great.

Mon, Aug 5 9:06pm · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

ajand …all you described could have been me. I'm surprised your Dr diagnosed you with HOCM. A murmur alone doesn't tell them that. It wasn't until my cardiologist did an echo (among other tests) and found the the thickened heart muscle that he said I had HOCM. We tried medicines that didn't really help so the end of Aug I had a Septal Myectomy. Two different doctors here told me not to have the surgery anywhere except the Mayo in Rochester Mn which is where I had it. Tests had to be repeated there even tho they had everything from here…just making sure of everything I guess. I could never live in Mn because of your weather but I think people there are so blessed to have Mayo at their fingertips.

Tue, Jul 30 8:17am · Statin Intolerance in Heart & Blood Health

I see this is an older post but I also have muscle pain from statins. I was taking 40 mg once a day but cut it in half (dr said to try that before stopping it altogether which was my plan) He also suggested CoQ-10. Cutting it back took away the pain and my cholostral was really good.. All numbers were great but the OVERALL went from 260 to 145 in just 4 months. MY PLAN is 3 months before my next test I'll stop it and see if it's still good since I'm over all an anti Rx person. I don't want to take any Rx's unless there is no way around it.