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Tue, Jun 18 4:35am · Seeking advice for first time Mayo Clinic visit with toddler (patient) in Visiting Mayo Clinic

If your toddler tolerates the car you could fly to MSP and drive to Rochester. I would rather drive than fly with my kids personally. It’s not even 1.5 hours from MSP to ROC and the drive is easy. Driving around Rochester is not bad at all. Mayo has valet parking you could use to help speed things up before and after appointments. There is an additional cost for valet, but I have never been charged for parking at my hotel so it may even out in the long run. Also, check VRBO for places close by that may family friendly than a hotel. Your stroller will be very helpful. Good luck on your trip and I wish you and your child safe travels!

Fri, Jun 7 4:58am · MGUS at young age in Blood Cancers & Disorders

Thank you for your reply! The hematologist recommended watchful waiting and that I have all the lab work repeated every few months. He was very surprised that it was detected at my age and not in the serum. Honestly, he really didn’t seem like he knew what to do with me.
I forgot to include in the original post: the protein detected was IgM kappa and was detected during immunofixation but not during electrophoresis.

Wed, Jun 5 10:06am · Undiagnosed auto immune disease in Autoimmune Diseases

I hate that you are going through this! When you see your doctor next time, request extended bloodwork (IgG, IgA and IgM for example) and a referral to immunology. There are many immune deficiency syndromes that can be detected through bloodwork-if the provider is willing to look. I have found that young age often works against you in this fight. Many, many medical providers (some at Mayo included) can have blunders on when it comes to what conditions someone of a certain age can have. Keep pushing until you get answers. Best of luck to you!

Wed, Jun 5 7:45am · MGUS at young age in Blood Cancers & Disorders

Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS in people my age, especially given that the M-protein was detected in my urine and not my blood serum. Anyone with a similar experience of diagnosis at a young age and/or urine-not-serum detection MGUS? Thanks!

Sat, May 11 2:45pm · Making decisions about air travel when traveling for medical help? in Visiting Mayo Clinic

I flew round trip from my local small airport to Minneapolis (connections in Atlanta) a few weeks ago. I only fly Delta so I can only speak of my experience with them. I booked my tickets online and then called their disability assistance line. I told them that I had mobility issues and that I would need wheelchair service from the time I arrived at the airport until I got to my rental car. I told them I had someone flying with me to help me on the plane and to drive, but that she couldn’t handle my luggage and hers. They said no problem and meant it. There was some one waiting to help me get in the airport, through security, to my plane seat and waiting with a wheelchair for connections. They took care of my carry on and everything. Everyone was super nice and I didn’t have a single problem. I would suggest not waiting until you arrive at the airport to book wheelchair services. It just speeds everything up to have it noted on your booking in advance of your arrival. I also highly recommend signing up for TSA-precheck. It makes the airport experience easier to handle for those with mobility and disabilities (keep shoes on!).

Thu, Apr 25 6:03am · Initial Visit in Jacksonville- How Long Should I Expect to be There? in Visiting Mayo Clinic

I just returned from Mayo Rochester. I was there 5 business days and it still wasn’t long enough. If you have a complicated case, I would suggest 7 business days (maybe drive home for the weekend?). A word of warning: some offices will not allow a follow-up until *all* of the tests and labs are done. They weren’t able to get my last test scheduled while I was there and the Neurology office absolutely refused to allow me to see the doctor to discuss the 5 test and 30 or so labs I was able to get done, before I flew home. So I have to fly back to Rochester for the test and follow-up appointment. You may want to check with the office you’re seeing and find out how they handle follow-ups. And as a previous poster said: they want their own results. I had labs, tests and scans repeated that I had done at home within the last 3-4 months, but they wanted their own. A very expensive and time consuming “preference” for the patient to deal with, especially for things that don’t change over time (I.e. negative labs for infectious disease and heavy metals). I hope your trip goes well and they are able to help you.