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Tue, Sep 24 6:53pm · Pancreatic cancer—Whipple procedure in Cancer

I had my Whipple in early February of 2018. Goofed up by trying to eat too much too soon, and it set me back big time. By week 8, I could eat well, exercise ( 2 mile walks, cutting down tress, feeding our horses, and could drive with no problems. At week 10, I started Folfirinox chemo, twice a week for 6 months. I was good for about 5 -6 sessions, but by session 8 I really wanted to quit, but did not. This week I am in my last chemo session, can still eat like a horse, but am very weak and wobbly most of the time. I find I spend a lot of time in the recliner, or laying down. Thru Whipple, recovery and chemo, I have lost up to 54 lbs. I have gained 13 of it back. I take Creon with my meals. Bowels are inconsistent. Some time I only ave a five second warning, and that leads to messes in pants, which made me cry at first, but I have overcome the feelings. It has gotten bed with perscription drugs, but I do not go out without a change of clothes. If I had not had chemo, I think I would have been sailing along at week ten. MY Mayo Drs. said it was best to do the chemo, and I figured they know a lot better than me. I will say I will ever do chemo again. I went thru 6 months of feeling pretty crappy, and am told it may take up to a year to get back to a my new normal. Well. I am pretty hard headed and strong in my faith. I will reach my new normal in 3 – 4 months. Best to all in the battle. We all recover differently, but we recover. Never give up.

Tue, Apr 30 8:38pm · Whipple procedure and follow up chemo in Cancer

Hello Colleen. Yes, 1st chemo was 4/22, Folfirinox. Was vomiting by 6 that evening, and into next day. Got couple of bags of saline, some Zofran and Atavin on the 23rd. It helped a bunch. Got pump unhooked the 24th, and got 2 bags saline, Zofrna and Atavin, along with iron thru port that day also. I imagine they will play with dosage, nauseau meds with next chemo on 4/6. The iron really makes a quick difference in fatigue and energy level. Little tired the last couple of days, but I tend to push myself pretty hard. Best thing is I can eat like a horse on most days. I am very positive about chemo. There will be bad days, but there were eight weeks of bad days after the Whipple. Love this site. Thank you. Bill Kennedy

Thu, Apr 11 3:31pm · Whipple procedure and follow up chemo in Cancer

No problem, as I knew what you meant. Yes, it is a tough lonely road. Number of people affected is rather small compared to other cancers, but it is one of the top three killers. Sorry to hear your have breast cancer. I am hogging the cancer in our family. Prostate cancer with prostate removed in 2004, not it is back again. Will take care of the pancreas first. and worry about the other afterward. Stay positive and stay strong! .

Thu, Apr 11 2:34pm · Whipple procedure and follow up chemo in Cancer

I had the Whipple on 2/8/19. I can eat, even much more than I should considering the "small potions" instructions I received after surgery. I got into trouble after I got hoe as I was on a high protein diet, and my stomach could not yet handle it. I ended up back in the local hospital for a week. I am not taking any enzymes, as I had a follow up check up at Mayo Rochester on 4/1, and the experts said I was doing well, and did not need the at that point. I lost of 40 pounds before and after surgery. I have gained back 4+ lbs. I do not know if I will ever get back to 204, but will settle for 185. Went down 4 inches on waist size, so had no jeans to wear. Most of my shirts are XL, but luckily, some are larges.
Now and then I may have some pain after eating, especially if I east too much. Had a small problem with diarrhea, earlier this week, but took some Kaopectate, and it took care of the problem. I start Fiofirinox chemo on 4/22, so I am pretty sure diarrhea and I will be meeting again for 6 months. Oncologist says she can help with it. Best to you and your husband. It is a difficult journey that we are on, but one must stay positive, which is not an easy thing to do.

Sat, Apr 6 9:09pm · Whipple procedure and follow up chemo in Cancer

Thank you for the info. I just need to detune and make myself wait for the good to come. This week is the first week I have really been able to notice improvement in feeling better physically and mentally.

Sat, Apr 6 4:00pm · Whipple procedure and follow up chemo in Cancer

I started with small portions about 5 times a day. Now, 2 months after surgery, I have 3 meals, and some sort of small snack between them, and in the evening. It may be some apple slice, cookies, ice cream, popcorn, or a sandwich. I know that is not the best diet, I try to limit my portions, but find I can put down a pretty good amount with out discomfort most of the time. It is not the amount I used to eat. I lost of 40# (204# down to 160#) and hate to look at myself in the mirror. I would like to get back up to 185, and could live with that. I am getting out to walk the dogs a mile or or more at a time, and have been doing some light outside chores. Was at a follow up at Mayo on 4/1, and they thought I was doing well, even though I think I should be farther along on getting back to my new normal. Other Whipple survivors I have visited with say I am doing well, so I need to ramp up my patience factor. Am curious about your Whipple experience, and if you had follow up chemo. A sincere "Thank you" for you reply.

Thu, Apr 4 8:20pm · Whipple procedure and follow up chemo in Cancer

I had the Whipple procedure done at Mayo 2/8/19 and got out of hospital on 2/19. Had to go back to my local hospital a week later for dehydration pain and nausea, and was there for a week. Just had follow up at Mayo 4/1, and the surgical crew thought I was doing well. I can eat, and have to limit myself at meals, as I tend to want to eat too much.I lost 40 pounds, and still feel super weak and get fatigued easily. Mayo oncology want me to start chemo at 2 months out, and I have an appointment with a local oncolog4/10. My question is am I smart to be looking at chemo when I feel so worn out. I see chemo recommendation for starting at 8 to 12 weeks after surgery. Also, am wondering what chemo course to take. Mayo liked the Flofirinox treatment.. I was tabbed at Stage II after the Whipple. They did the normal resection, but also resection a section of my transverse colon that appeared to be cancerous.
the overall diagnosis was Pancreatic cancer. I would appreciate any input. Thank you in advance