Badges (1)


Member has chosen to not make this information public.

Groups (1)


Member not yet following any Pages.

Posts (26)

Nov 18, 2019 · Foot neuropathy in Neuropathy

Get as many gabapentins as you need. I take 4 300mg capsules a day, If you need more,speak with your Dr. I have friends that take 10.
Also if you live in a legalized Marijuana State, try some of the active strain creams (a good store will guide you). I had a double transplant, so currently I only take prescribed medications, however with the cream I seldom needed medications. Here in Las Vegas there are Chiropractors that sell you relief, however it's little more than a Tens treatment (be careful it's a temporary treatment).
When the Needles Pain Starts,it totally uncontrollable and sometimes it's also the Burning skin areas – this is very painful and do not tolerate Anyone belittling your pain – and it's also Bad Karma.

Nov 18, 2019 · What are the financial challenges after transplant with medicare? in Transplants

Prednisone is a drug that again is increasing my blood sugar (120 to 150), while when I was not taking it it averaged 20 points lower. I hope to be free of this medication as soon as possible.

I'm at the point that I must be active again, and I still have many food, outdoor and mobility restrictions. Six weeks after my transplant I had a carotid artery surgery and had a minor right side stroke. So I still have physical and occupational therapy and I'm about 80% back. The Last 4 months have been "interesting", however I'm grateful for the Mayo's excellent doctors – even though I think they are in a hurry to push you out the door, since they desperately need bed space as they are doing an incredible number of transplants.

Nov 17, 2019 · What are the financial challenges after transplant with medicare? in Transplants

I received both organs at the same time (now 5 months ago) from the same donor. I exercised 5 days a week (aqua aerobics, Yoga, Gym, etc.) and was very active. I never had any breathing issues and now it's only when I exert myself. This started with the transplant. Same as you, when I walk uphill, climb stairs,exercises, etc. it's a trigger. When I bring it up with Doctors (even at the Mayo) they just ignore it. I tapered off Prednisone, however now my white blood cell count is at a critical level (even though I feel great) and they placed me back on 5 mg of Prednisone. I'm still required to do blood work every two weeks – and may have to go back to weekly.
I received a prescription for NEUPOGEN two weeks ago, however my PART D prescription plan is a nightmare attempting to get it approved. I will sign up for a Plan next year (especially since they are doubling the price – I guess hoping that most Seniors will not notice it since they are doing it via the deductible).

Nov 17, 2019 · What are the financial challenges after transplant with medicare? in Transplants

Thank You for the info, for I was hoping the feeling would come back, however like yourself – I will accept it as my new normal. Did you have a "panting" type breathing after the transplant ? And if so how long did it last? I'm only 5 months post Liver and Kidney transplants.

Nov 17, 2019 · Foot neuropathy in Neuropathy

I've had foot neuropathy for years. I now take gabapentin daily. I've tried Massages, Tens Units and they provided no long term solutions. The only product that really helped was an active Marijuana cream that I purchased in CA. If you are in a state where it's legal you may want to purchase a small tub of pharmaceutical cream ( about $ 70 for 1+ oz) and try it. A light coating (wax like) lasted for days. Nevada is now totally legal, however I take many medications for my transplants – so I'm waiting.

Nov 17, 2019 · Liver transplant support group in Transplants

I was in Las Vegas Hospitals for a month Last Year before they finally correctly diagnosed me with ammonia in the liver. I also was given Lactulose and xifaxan. I went to the Mayo in Phoenix and they looked at my past year of tests and determined I needed a Liver and Kidney transplant. For me it was a 9 month process of testing if I was healthy enough to qualify (I was 68). Last June again the ammonia caught up with me, and after calling the MAYO, they insisted I go to a local hospital and they would monitor me. Five days later I woke up and was told I was at the MAYO in Phoenix. After being stabilized, I had one additional test, which I fortunately passed and was placed on the transplant list that day and incredibly received the transplants the next day. Look at the success rate of each hospital and the five year survival rate. Do not skimp on this research. Be suspicious of low volume hospitals. The Transplant for me were not easy with major pain until we finally (2 weeks) discovered I cannot tolerate "OXY" drugs, however now, 5 months out (while I still have some problems) my overall health is better than it was 10 years ago. Get on the list ASAP, the sooner it happens the better, It will be based on your MELD score not first come first served. You will also need to be within a few hours of the transplant center and you will need to remain within a few minutes of the center for 6 weeks after discharge. Also price out the medications you need (some are quite expensive) and you will possibly need to hunt for help.
Good Luck, and I hope hearing from someone who has just been through it helps.

Sep 28, 2019 · Liver transplant support group in Transplants

This site is almost like SPAM !!!! If you register and forget your
password – you cannot retrieve it , if you try to Unsubscribe – you need
your password. So your stuck with endless emails.

Jul 26, 2019 · Liver transplant support group in Transplants

Taylor, hang in there. I now live in Las Vegas, however since liver transplants are not available in Nevada, I started researching transplant centers. For me I chose the MAYO in Phoenix and started the getting ready tests in Feb. of this year. I was almost complete (Stage 5 Kidney Disease and non-alcoholic cirrhosis of the liver). After a long story, I'll skip – I was emergency transferred from Las Vegas to Phoenix. Had my last test (angiogram – if you don't pass – no transplant – and was sent to my accommodations. That Night after being on the list for just a few hours – they had a donor that was an exact match. My liver (I'm only 6 weeks out) has been normal almost no pain – my kidney is another issue. Get to a Great transplant center and ask approximate waiting times. Here in Phoenix it's usually months – instead of years elsewhere Also look at their success rate now and several years out. Do not delay.