He’s going to contact my haematologist, physician and respiratory physician. Together they’ll consider the best treatment options. I don’t expect any news for 3 months.
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I got my results today. It shows axonal degeneration with active inflammation and evidence of previous vasculitis. Basically the neurologist is confused by the results. He even phoned the anatomical pathologist himself to get more information. So, there’s talk of being started on immunosuppressants and or steroids. Basically the biopsy resulted in more questions than answers.
Sorry I’ve taken so long to thank you for your reply. Unfortunately my myelopathy was caused by a lesion in the posterior columns and is almost like an incomplete SCI so it’s not treatable. I’m seeing my neurologist tomorrow and I’m hoping to get my nerve biopsy results. I’ll keep you updated on any findings.
Thank you. I was thinking of asking the neurosurgeon to take a skin biopsy for SFN as well while he was doing the nerve biopsy. I’m not seeing the neurologist to get results for at least 6 more weeks after the biopsy (the neurologist asked the neurosurgeon to do the biopsy). So it’s going to be a frustrating wait.
Hi. I’m booked to have a Sural nerve biopsy on Monday to investigate the cause of my severe peripheral neuropathy. The nerve conduction studies showed a mix of axonal and demyelinating neuropathy. Looking forward to the results and some answers. Anyone else been down this route?