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Fri, May 31 6:32pm · Pulmonary Fibrosis* in Lung Health

We found out in Feb.of this year my husband has IPF.He had a biopsy and that was how they found.We were just like you we were devastated.The pulmonary Dr.helped us with a Pharmaceutical Company and was given a grant for a medicine called OFEC,which is a clinical trial and it is suppose to slow the progession of IPF down.Without the grant we could never afford the medicine at 94000.00 a year.The side affects of the Ofec,are terrible but what else do you do.Through alot of sick times we have found a nap everyday and diet and exercise helps alot.Keep faith and take one day at a time that is what we do.Prayers for you.

Thu, Mar 21 8:20pm · Pulmonary Fibrosis* in Lung Health

@ligreen ,we found out in February, that my husband has idiopathic pulmonary fibrosis.I feel the same as you it is scary.My husband,is on OFEV and is fixing to start his 3rd round of it and when last week for his liver test and so far so go.The only side affect so far are mild nausea no appetite and some diarrhea.I try to read all i can on this disease so i will know whats normal and what isnt.I Just hope one day they find a cure but for now we will keep fighting this disease one day at a time.