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Dec 23, 2019 · This and That and Talk - My Transplant in Transplants

Hi Rosemary

Christmas Greetings from Scotland! It was kind of you to think of me. As I begin my sixth year post transplant I can honestly say that I have never felt better. Apart from leg cramps sometimes, i have no side effects whatsoever and I live a full and happy life Thanks to all the help and advice I received from fellow Connect members, I have no concerns about the impending changes to my meds as Scotland moves all its transplant patients from Prograf to the generic Adaport. Even more importantly, it will save our Nationalsalth Service hundreds of thousands of pounds which have been ring fenced to go straight back to transplant services.

Wishing you all a very Happy Christmas and health and happiness in the New Year. I add a very special thanks to all those families who have allowed transplants to go ahead after the death of a loved one; we owe you our lives and you have our eternal gratitude.

Nov 16, 2019 · Liver transplant support group in Transplants

Hi

I am five years post a very successful liver transplant. I took my awful Lactulose faithfully every day but still had one serious HE episode. It was unforgettable- three days in hospital and fed copious amounts of the stuff. It was dreadful but it worked. I was never given Rifaximin but I'm sure you will be fine if you take both meds faithfully and don't be tempted to miss a dose. I know it is disgusting but it is literally a life saver.

When i was admitted to A & E, the first doctor mis-diagnosed me but as soon as I saw my specialist he told my husband it was HE. He sniffed my face and said he could smell the ammonia! Embarassing, yes, but useful to know. I had no long lasting effects (as far as I know!).

Oct 7, 2019 · Prograf versus Adoport in Transplants

Thank you to everyone who responded to my question about Prograf versus Adoport. I have now seen my doctors at The Royal Infirmary of Edinburgh and they have explained the changes in full. I was very pleased to pass on the positive report from Mayo Connect!

Sep 30, 2019 · Prograf versus Adoport in Transplants

Thank you for your response. It is really good to know that Adoport seems to work just as well as Prograf.

I will change to Adoport when I have used up my existing stock of Prograf and I'll be closely monitored with additional blood tests etc

Can I take this time to thank all of you who have taken the time to respond to me today. Your positive responses mean I have no concerns about the change at all.

This is what Mayo Connect is all about and it is wonderful to have links to you all.

Sep 30, 2019 · Prograf versus Adoport in Transplants

My doctors also insisted that I use Prograf and no other brands. It was explained to me that there could be minor differences in brands which would require close monitoring and so it was safer to stick to one brand only. My doctors here have assured us that the changeover will be closely monitored with additional blood tests etc. Thank you for your response.

Sep 30, 2019 · Prograf versus Adoport in Transplants

I have always been on tacrolimus and it has worked well for me but I know others who have switched to cyclosporin. Now that I understand that Adoport is the generic tacrolimus I am more reassured that it should be okay. Thank you for your response.

Sep 30, 2019 · Prograf versus Adoport in Transplants

Thank you so much. Yes, I expect that renal cases would be similar to liver transplant but it is very reassuring to hear from you all. Thank you also for taking the time to send such a detailed reply.

Sep 30, 2019 · Prograf versus Adoport in Transplants

Thank you so much for your prompt reply. It is good to know that your findings echo mine. The few studies I have found here say there are no major differences.