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Mar 22, 2019 · Larynx sensory Neuropathy in Neuropathy

I have had a chronic cough and congestion for a couple of years. It's a vicious cycle. Apparently, the radiation caused damage to my esophagus muscles, so I have trouble swallowing, and when things get stuck I cough. that in turn aggravates the sinuses, and so it goes. I had the balloon surgery and botox injections which did not help much. I just have to eat smaller bites, eat slowly, and learn how to swallow better with a speech therapist. My is so bad sometimes that it aggravates the vagus nerve. I have actually passed out from it.

Mar 16, 2019 · Its just been two weeks, could this be Small fiber neuropathy? in Neuropathy

Thanks, but I saw both and orthopedist and neurosurgeon, and had multiple scans. Not cervical.

Mar 15, 2019 · Idiopathic neuropathy and dizziness. in Neuropathy

If an orthpedic told you, after an MRI, that it looked fine, do NOT go to a chiropractor who tells you your spine is out of alignment. If you needed therapy wouldn't the doctor have told you that?
I tried red light. It did nothing for me.

Mar 14, 2019 · Idiopathic neuropathy and dizziness. in Neuropathy

I read articles about it, some of which suggested it might help with other symptoms, so I contacted Dr. Thomas Smith at Johns-Hopkins. He thought it was worth a shot, so he referred me to Dr. Stephen D’Amato, who has offices in Providence and Bonita Springs, FL. I went to Florida. Dr. Smith said if it didn’t help by day four it was not going to. It didn’t.
Everything I read said it does help with pain, so if you have access give it a shot!

Mar 14, 2019 · Idiopathic neuropathy and dizziness. in Neuropathy

It did not help me, but pain is not my issue. It does seem to help most people, but there are not many places doing it.

Mar 13, 2019 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I have sort of become accustomed to it, as weird as that sounds. It is literally constant. The numbness rears its ugly head when I cut myself or something like that, and don't feel it.
The thing I notice much more is the loss of dexterity in my hands, because we use them all the time, so it's a constant reminder. That and the loss of upper body strength, which I notice every day.
Over the last few years I have plateaued; no better, no worse, or maybe some better in the right hand. That's why I still hope.
Thanks for the reference.

Mar 13, 2019 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Angie, I had base of tongue cancer in late 2014. I had Cisplatin chemo and radiation, which ended in mid-December 2014. By March 2015, I had developed numbness and tingling in my hands, which eventually spread pretty much to the whole upper body. Today, I still have the numbness and tingling in my hands and arms, and even into my shoulders and both ears, but fortunately no pain. I have no lower body symptoms at all. I have a significant loss of dexterity, worse on the left side. The right side did improve some over time.
I have had and tried all kinds of treatment from the very start: therapy, medications, tests, acupuncture, etc. It didn’t help. Nothing has helped.
I ran across an article on clinical trials by a company called WinSanTor. They are using a drug based on perinzepine, an existing medication, called WST-057. It is on a fast rack since perinzepine is already FDA approved. Check them out. It has been mentioned in threads on this site. It sounds promising but may not work for everyone.

Mar 12, 2019 · Anyone Heard of Pirenzepine for Small Fiber Neuropathy? in Neuropathy

Actually, they are including chemo induced neuropathy, per my communications with them. My fear is that even if it works for some it may not help me because mine is possibly dual induced and has been here for about four years, i.e. permanent.