Hi John. Remember me … I’m the one with autoimmune attacking my lungs. Also bronchiectasis and interstitial pneumonitis … that’s why i keenly follow this bronchiectasis thread. I’m tapering my steroids now. Have been on 15 mg since June 2018. Last March
tried tapering me and we reached 10 mg But I had a bad flare up and was back to 15
Mg of prednisone . I was very sick
For six weeks and almost got
Hospitalized. Last May 2 I started tapering again and I followed one of the comments here to just do tapering 1 mg
At a time. So I’m doing that plus
My doctors advise to make TThSatSun as my tapering days and MWF I’m still
On 15mg. Plus he increased my cellcept to 3 tabs a day. In addition I was placed by my pulmonologist on prophylactic antibiotic . Meaning I take Zythromax 250 mg MWF. Hoping to stem off lung infection. It’s May 7… my low grade fever from autoimmune comes again but resolves itself. I need more rescue asthma inhalers .
But all in all, I hope things will work out well and I can go down 1 mg again after two weeks. I am “assured” when I read the stories of others having difficulty in tapering steroids but manage to get through it. My doctors emphasized that really I should start tapering the steroids fearing the side effect they can do to my liver and kidneys. So I am also psyching myself that I will succeed in. This tapering business without too much negative health issues. The goal is to get me to zero or max 5mg
Prednisone a day. Just wanted to share this.