I have the exact same problem of my hands, feet, and it is growing up both of my legs I mean my calves, thighs. It is getting excruciatingly worse by the week. It is the worst feeling ever tingling is so. and the tightning feeling is just unbearable. They just keep telling me that there is nothing that they can give me that they haven't already given me to help me with this. All of the tests that they have Brian such as MRIS and such show nothing so I think with half of the stuff they just think that I am crazy. The EMG shows the neuropathy but other than that I can explain why it's so bad my neurologist is says that it's a very rare form after peripheral neuropathy in the small fiber neuropathy. So I don't know what to do to help me. I cannot sit up for more than 10 minutes without it getting so bad that I have to go back and lay down in the bed to make my hands feel a little bit better. I can't stand very long without feeling the same way so I just get in my bed because I don't know what to do to be able to relax my hands I just keep my arms up pillows that's how bad it is.