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Posts (5)

Thu, Apr 16 10:31am · Neuropathy: Anyone have any experience with gabapentin? in Neuropathy

I'm sorry you're not able to get around very well. I am able to walk, my feet don't always hurt so bad. I don't take Lyrica because the last time I tried it I gained 4 pounds in one week I know that sounds terrible but I was scared I was going to gain 30 lb in 1 month. I take percocets every so often and they don't help at all. Is Cymbalta doesn't cause me to have the memory problems like the way that you are having. So I don't know what they can give me that will help. So I wish you the best.

Thu, Apr 16 10:02am · Extreme pain in hands in Neuropathy

I have not. I see my doctor in a couple weeks so I will talk to her more about it. And I'm trying to get back into the RA but they had to reschedule my appointment until July so it has literally taken 7 months for me to get in I had to change doctors because of my insurance.

Thu, Apr 16 9:59am · Extreme pain in hands in Neuropathy

What is supplement protocol. There's no way I could put my hands and cold water they would freeze off like I was sticking them in snow. My hands get so cold that I have to wrap them up and it seems like it takes 45 minutes for them to get warm. It is terrible they just get worse and worse as the days go by. I'm on gabapentin, Cymbalta. And Topamax. What are you taking for this that might be helping you. I have tried everything and nothing seems to work so I don't know what to do. Everybody knows that opioids don't help with nerve pain and we can't seem to figure out what nerve drug it's going to help me. So if you have any suggestions please let me know because I am suffering immensely. I even have it around my ribs and abdomen to where it feels like it's going to literally squeeze the life out of me.

Thu, Apr 16 7:53am · Extreme pain in hands in Neuropathy

I have the exact same problem of my hands, feet, and it is growing up both of my legs I mean my calves, thighs. It is getting excruciatingly worse by the week. It is the worst feeling ever tingling is so. and the tightning feeling is just unbearable. They just keep telling me that there is nothing that they can give me that they haven't already given me to help me with this. All of the tests that they have Brian such as MRIS and such show nothing so I think with half of the stuff they just think that I am crazy. The EMG shows the neuropathy but other than that I can explain why it's so bad my neurologist is says that it's a very rare form after peripheral neuropathy in the small fiber neuropathy. So I don't know what to do to help me. I cannot sit up for more than 10 minutes without it getting so bad that I have to go back and lay down in the bed to make my hands feel a little bit better. I can't stand very long without feeling the same way so I just get in my bed because I don't know what to do to be able to relax my hands I just keep my arms up pillows that's how bad it is.

Mar 10, 2019 · Undiagnosed auto immune disease, put on Leflunomide in Autoimmune Diseases

I was diagnosed with Sjogren's syndrome it sounds very similar to a symptoms that I have right now. Ask your rheumatologist or your neurologist to have the test done on you it's very simple to have done. The Plaquenil is the drug that they have given me and it does only help a little bit. But have the test done. I'm surprised they haven't suggested that for you. Look it up and you'll see what I'm talking about.