About

First Name
Catherine

Health Interests
Bone, joint, and muscle disorders, Cancer, Chronic pain, Heart and blood vessel disorders, Infectious diseases, Kidney and urinary tract disorders, Lung and airway disorders

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (5)

Sun, Mar 10 1:56pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Yes defiantly do not move to avoid MAC. The bacteria that causes it is everywhere and in every home. Mostly only people with a low immune system or other lung problems will develop MAC. My doctor is still trying to figure out where I may have contacted it.

Sun, Mar 10 9:24am · Extreme fatigue with MAC in MAC & Bronchiectasis

The one that effect my hearing was azithromycin.Luckily when I stopped it my hearing came back. I am now on Etibi ,Rofact and moxifloxacin I think I will be changing the moxifloxacin as it was recently on the news about how it can cause problems with the aorta .

Sun, Mar 10 9:17am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

The side effects should subside over the next month or so. If not talk to your doctor he can change and try other ones.

Sun, Mar 10 6:05am · Extreme fatigue with MAC in MAC & Bronchiectasis

I never knew I had any infection till I had an accident and had a complete body scan .This is when they found problems with my right lung.
They did a sputum test and watch me for about a year then did a second sputum test and confirmed I had MAC . So the doctor started me on 3 antibiotics 3 times a week. I had to change one as I started loosing my hearing. The one they change me to is worse as now I have sever shoulder pain and my body aches all over. I too get very tired and have lost my appetite I am in bed early usually around 8:30
and up around 7 am.I was wondering how many days a week do you take the antibiotics . I only take them three days a week. Is this the
norm?

Sat, Mar 9 3:08pm · MAC symptoms in MAC & Bronchiectasis

I to have been diagnosed with MAC about 6 months and currently taking three different antibiotics.
One is giving me shoulder and back pain. Moxifloxacin . The other two I can take with no problem. Rofact and Etibi.
How many times a week do you take them? I take mine Monday Wednesday and Fridays only.
Does anyone else also only take them 3 times a week.Not sure when I go back to see the Doctor in April if he will increase my dosage .