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Thu, Mar 21 11:39pm · MDS - RARS in Blood Cancers & Disorders

Is there nobody with MDS out there? I really need to contact someone who has been treated with Vidaza (Azacitidine) What about treatment for iron overload with Deferasirox? I'm afraid to take these treatments because I only have a problem with my red blood cells, but both of these meds will reduce my white cell count as well as my platelets. I'm afraid that the meds will be worse than the illness.

Tue, Mar 12 7:19pm · MDS - RARS in Blood Cancers & Disorders

The myelodysplastic syndromes are grouped into about 6 different categories. The category I’m in is Refractory Anemia with Ring Sideroblasts. Refractory anemia is a condition in which the bone marrow fails to produce sufficient normal red blood cells. Iron molecules, rather than helping the red blood cells to produce hemoglobin which carries oxygen to the cells of the body, simply form a ring around the nucleus of the red blood cells, causing iron overload.

Mon, Mar 11 9:50am · MDS - RARS in Blood Cancers & Disorders

I was diagnosed with MDS, specifically Refractory Anemia with Ring Sideroblasts in 2013. I became transfusion dependent 11/2 years ago. Is there anyone out there who is or has been treated with Azacytidine for RARS? Has anyone been treated for iron overload with Deferasirox?

Sat, Mar 9 1:30pm · MDS and cognitive decline in Blood Cancers & Disorders

Hi I am new to this site, but I was diagnosed with MDS, specifically RARS in 2013. I have become transfusion dependent for the past 11/2 years. I have been finding that my cognitive abilities have been slipping. I have problems with concentration, memory and at times some mild confusion. I haven't asked my doctor but I feel that it is due to my low oxygen levels when my hgb is low.