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Posts (12)

Fri, May 15 9:26am · Husband has Essential Thrombocythemia (ET) & MCI in Blood Cancers & Disorders

Hello Tresman10…….my name is Claire and I have jak2, ET and MPN. I have been on Hydrea for two years and my blood Dr. Tells me that I am doing very well inspite of the fatigue. Good luck to you and your husband with this journey

Fri, Feb 7 12:20pm · Side effects of Hydroxyurea, ET in Blood Cancers & Disorders

The Hydrea somewhat controls the itchiness but not completely and my energy level is better, mostly in the morning, but by early afternoon I start to fell the fatigue. No other symptoms that I am aware of.

Thu, Feb 6 6:11am · Side effects of Hydroxyurea, ET in Blood Cancers & Disorders

I also have jak2 and ET. Good luck with your treatment

Wed, Feb 5 7:57am · Side effects of Hydroxyurea, ET in Blood Cancers & Disorders

Hello….my name is Claire and I have been on hydroxyurea for 1year and 2 months. I do not have redness of the eyes but
I do have redness of the scalp which started long before my diagnosis. My doctor says it is from the blood cancer myeloproliferative neoplasm, I do not have redness anywhere else only some itchiness

Sep 16, 2019 · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Hi Barbie……I have jak2…..myeloproliferative neoplasm, I believe it is similar to pv. Chronic fatigue most of the time, poor balance and occasional nausea. When I feel weak I try to rest often and for at least two hours at a time. I usually go to bed by 6 o'clock just to relax and watch tv

Sep 11, 2019 · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Hi Barbie 75….I also have jak2 and take 500mg Hyderabad six days a week. I still have extreme fatigue so I just take the time to put my feet up and rest my body or get right into bed. This seems to work. Mornings are the best part of my day but by noon I feel weak. Good luck

Aug 3, 2019 · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Hello mjpm2406……thank you for the feedback in great detail. This is all so new to me and when I ask my Hematologist questions he tells me to let him do the worrying but now I am going to ask him about the bone marrow aspiration and biopsy. Thank you again this information has been very helpful..

Aug 2, 2019 · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia with jak2 and would like to have the link to information for this. If anyone out there can help me with this I greatly appreciate it
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