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4 days ago · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Hi Barbie 75….I also have jak2 and take 500mg Hyderabad six days a week. I still have extreme fatigue so I just take the time to put my feet up and rest my body or get right into bed. This seems to work. Mornings are the best part of my day but by noon I feel weak. Good luck

Sat, Aug 3 8:48am · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Hello mjpm2406……thank you for the feedback in great detail. This is all so new to me and when I ask my Hematologist questions he tells me to let him do the worrying but now I am going to ask him about the bone marrow aspiration and biopsy. Thank you again this information has been very helpful..

Fri, Aug 2 11:53am · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia with jak2 and would like to have the link to information for this. If anyone out there can help me with this I greatly appreciate it
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Wed, Jun 26 7:11am · Medication for JAK2 in Blood Cancers & Disorders

Sorry about the date, it should be 2018

Wed, Jun 19 10:57am · Medication for JAK2 in Blood Cancers & Disorders

Thank you also. Please let me know if you experience any itchiness or weakness

Tue, Jun 18 4:25pm · Medication for JAK2 in Blood Cancers & Disorders

hi and thank you for responding. I am sorry you are going through two separate issues and I wish you well. Do you experience any itchiness……claire

Tue, Jun 18 7:04am · Medication for JAK2 in Blood Cancers & Disorders

Hi…my name is Claire and I have jak2 mutant. Diagnosed in November 1918 and was given the medication hydroxyurea 500mg five days a week. The weakness and fatigue has greatly improved but still remain. Some days I have to mostly stay in bed because my body is so weak. For the most part I think I am doing well but I wonder if anyone else out there still has chronic weakness. Also does anyone have an occasional itch with blisters on scalp. Thank you for any information You may have